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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Tuesday, June 23, 2009

Perfect

I knew posting about Gator's ears would make me feel better. I am so glad I have you guys. I think that we are going to PCMC because the dr.s that our ped recommended aren't covered by our insurance. So I am going to see if Grimmer can see us. Par recommended from Arna's momma, he is at PCMC. It sounds like most of you have had it done there, another reason I feel better... Thanks again everyone.

So much better!

We are doing so much better. Thanks again for all the help and nice words.

Yesterday Gator woke up with a little blood in his ear. Melissa a fellow heart momma, gave me this great tip to get an Otoscope from Dr. mom.. I am still learning but it looked pretty ouchie in there. So I took Gator and Ry to be checked out by our ped. (so much for the month without a dr visit) Turns out, Gator has a double ear infection, treating it is tricky... So we have been referred to a ENT. This means a possibility of tubes... We have never experienced tubes in our family, none of my brothers or sisters had them and I can't recall if daddy or his bro have ever had them so it will be a learning experience for us. I don't think it is that major and actually will be rather beneficial. So I look forward to hearing what the Dr. will say.

Ry's cheek is looking great. She is still loving swim... I think we may get some sunny weather to go use those new skills...

We had a really nice weekend visiting Grandparents in Idaho Falls. We were really busy with all the activities but it was a nice break from home. One of the Grandpa's turned 80!!! The only scary part was driving home in blinding hail and rain. Ahhhhh!

Thursday, June 18, 2009

on this day.

We plan on moving past our LOSSES. I wish I was sick or that I could feel the spirit of the baby with me still... We have had to move on before and we know that we are not the only ones to have a rough time.

AND SO:

On today's agenda: Laundry, disinfecting, organizing, and daddy day gift buying.... Got any good ideas? Jeff want socks.. How exciting!!!!!!!

Thanks for all the wonderful comments and sweet words..

Wednesday, June 17, 2009

a day

"A dog pile trial" is something that a friend says happens when a bunch of crazy hard things happen at the same time... When you think that you can't manage one more thing and so you feel so piled upon that you may just as well be under the dog pile.

"Tomorrow's another day and I'm thirsty anyway so bring on the rain."

We hit another road block in finishing our family. We can't catch a break when it comes to this baby making thing. We are doing well. I am feeling better today after a little IV help from the Dr.s yesterday and lots of rest. Daddy is feeling better too, taking on all the roles while I am under the weather means a nurse, back yard worker, kids watcher, worrier, food maker, house keeper, emotional rock and so much more. He got to worry at work today. I really am feeling much better so I hope he's not worrying too much. The kids have no clue and seem to be unaffected. Besides they spent the greater part of the day with Ericka, Zack , Isaac and Debbie Girl, whom they adore. Thanks guys.
I feel happy and totally blessed to have my two little miracles. They make situations like this much more bearable. It would be selfish of me to not feel lucky to have them. Plus I know that I am being comforted by the spirit and can feel Him with us as we heal. It was just a few days ago that we stood in the sealing room and talked about families being together forever and I know it is true.

On another note-Here is a laugh from Ry (the best medicine)

Ry was interested in a conversation my sister was having about a lady who was ill...
They were talking about how she was in the hospital and not doing well.

Pres said-"I really don't think she is going to make it"
To that Ry responded-"huh, to what?"

Gator is also talking so much. I need to catch him on video, singing some time.. It is pretty funny.
We have almost gone an entire month without a visit to the hospital or the doctor's office. I am going to take some treats into the office so we can celebrate and so they don't forget who we are... HAHAHA!

Wednesday, June 10, 2009

8 years and counting.

Yup, it's true we've been married 8 years. It doesn't feel like 8 years to me. Maybe cause some of those years were so hard waiting for a baby or helping a baby get well that they rushed by so fast... Important years, just fast ones.

We got to do the neatest thing in my eyes for our anniversary. We spent the day as guides in the sealing room in the new temple. It was really amazing to be able to spend time in that room again. It was warm and happy and peaceful. I hope everyone that came could feel a little of that. My favorite part was all of the little children who came. In the sealing room there are two large mirrors on opposite walls. They face each other and are leaning just so, that when one or many stand in front of the mirrors they seem to be going on and on forever. This symbolizes eternal families and with the mirrors it is tangible you can see what it means. Knowing that I get to be with my hubs and my babies forever and ever is amazing. The little kids loved waving their arms and seeing themselves wave a million times. They also loved the chandeliers... I wouldn't want to clean over nineteen thousand crystals... But they sure do look perdy.

Our claim to fame is that Elder Holland came through with some guest and poked his head around the door and blew kisses and thanked everyone who was volunteering... It was pretty neat.

Again, props to PUFF for watching our kids so we could go. Stittoes are the best.

I look forward to many many plus 20 more years together...

Events

Here are all the darlings behind stage waiting for their number... They danced to the newer version of Zippity do dah... I have to give props to my little sis for the make-up job she did on Ry's bruise. You can hardly see it. Ry gets to wear make-up in public four times a year... Oh, she cannot wait for Halloween.

The tap dance was to Boogie-woogie-bugle boy from company B. She doesn't love the hat but she has a darling Garrison Hat and a tie that finish this costume. Daddy brought her flowers and she also got a trophy for her efforts this year...

On to the next thing... Swimming lessons. What a fish. She loves the water. The only bad thing is she is so confident with herself she has gotten in some scary situations in the past. I want her to be able to get out of those situations safely...

Comes up with a smile on her face every time. Even when she is nearly drown. I love this bit of the lesson... "Try and blow bubbles, while kicking with legs straight, I'll hold you arms, keep your body on top of the water, watch out for other swimmers near you, you mustn't worry so much." That is a lot for one little person to think about at the same time. Part of it is social, part of it is lesson. She loves having two friends with her. Kaylee and Ellie(not pictured)
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Thursday, June 4, 2009

The Grad and a DOOZY

Even though she has another year of preschool she had a celebration of education. It was cute to see all the little things she has learned this year.

Ry with Miss Joey.

This happened yesterday. Poor girl, got in a fight with the road... guess who won. She flew off her bike. Like I said before she just gets right back on. Last night after her incident she only wanted to walk for a while. There was no way she was going to try riding again. Then today she decided she might give it another shot. I was so glad she had on her helmet. I hate to imagine what could have happened if she was not wearing it. She kept saying... "Daddy was there to rescue me!"


Along with her facial injuries she also sustained some minor scrapes to her arm and knee/leg. It looked like she was storing a jaw breaker in her cheek. Most of the swelling has gone down today... Just in time for her little dance recital.
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