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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Tuesday, September 29, 2009

Fall is in the AIR

I was out scouting a location for a family shoot I was doing and I took a few of my kiddo's... Ry gets to choose how she wants to wear her hair on Mon, Wed, Fri, and Sat. That is, if we don't have anything major going on... Well she chose Straigh hair today... She looks so different to me... Gator had a major goosie-egg on his forehead that took some editing...

You can really see how much alike they look... WOW!



His outfit looks like a mini Jonas Brother... He loves his "star shoes"
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Monday, September 28, 2009

trouble with the movie

Sorry there was trouble... Here are a few of my faves



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Sunday, September 27, 2009

Use it all you like!

Sure anyone can use this... It is totally fine... It was an insomniac moment... LOL

Saturday, September 26, 2009

I wrote a little poem

This Season's gonna be a DOOZY!!!
With Flu and coughs and Noses OOZY!!!!
So if you might be com'in round here
Can we make just one thing clear?
I know that I may LOOK real good
But my immune system just don't work like it should
When you've had it tough
For me it is 3X's as rough
We are gonna try real hard to stay well
So if you're sick- PLEASE- phone us, text us, or send it snail mail!
LOVE, Gator

Friday, September 25, 2009

projects

So does anyone else do this?

- Make that huge list of things that need to be accomplished, finished, and managed.
I am slowly moving down that list. Checking things off, feeling better about my home, feeling organized, and cleaner... Then I take a deeper look and add things and new things come up and my list keeps growing and growing...

I don't think it is going to end....

Who has ever heard of Fall cleaning...

AAAAHHHHHH

Tuesday, September 15, 2009

Heart Walk-Gator's Gang

Pre-walk

walk

Ry

Gator
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Trek

So here is a quick view of the primary trek... I ended up making 36 child bonnets and 1 adult, two pioneer skirts, one apron and one little boy vest....
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Sunday, September 13, 2009

Always late but worth the wait!

I am late on this news... But, I did want to share the amazing news of a Hero I am following. His name is Paul Cardall. He has the best news of a new lease on life and a new heart. I wish his family the best and I also hope that the family who made the decision to offer this gift, feels comfort at the loss of their loved one.

In other news... I am sooooo glad last week is OVER...... It was busy...

Ry's birthday/school
clients
babysitting
primary trek
super Saturday
Heart Walk

all checked off my list...

Now on to :
Ry's first day of dance
cleaning up the disaster I call home
Ry's School
clients
ear tube post op check up
finishing the move from our old ward house back to our old old ward house...

Thursday, September 10, 2009

First day of Preschool


First day of preschool and also her birthday.
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Few candid birthday pics




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Fire TRUCK

Gator and Ry got to sit in a real-live fire truck. Gator was so over come, he just kept watching everyone else. We spent the morning trying on gear and checking out the jaws of life and sitting in the "driber"(driver) seat and sliding down the fire man pole. That by the time we got a few blocks away after we were all done, Gator started to cry and want to "see Paul, a fire truck, i dribe"; "please mommy, see Paul...... I SEE PAUL"
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After LLD we worked with TRACTORS


Good thing she has her helmet on.

HOG HEAVEN

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The Famous Lunch Lady dinner






We got to have a very fun lunch lady dinner with our friends... I promised I wouldn't post pictures of Debbie dressed up in lunch lady land clothes, but I have to show how fun this is... Plus it was Yummy too!!!

Thanks for the FHE!
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Monday, September 7, 2009

Our Little Birthday girl



Ry is turning Five... Holy cow, where did the time go.. She is so fun and totally funny. She loves to eat mac-n-cheese and ride her bike.

p.s. The pictures are really fuzzy and the music catches in my slideshow, but this is my first one... You can at least tell how darling she is.

Thursday, September 3, 2009

Photo Opp


Here is a few shots from our little trip to Lagoon... With our Utah Kids Club Card that Gator won in the diaper derby, we got into the park two for one. So we saved a grundle and couldn't pass this by. The Kids loved it. Ry was able to ride a bunch of things because she is so tall. Gator loved the kiddie rides, he even rode the "puff" ride which I wasn't and am still not sure if he should/can because of his heart, but he seemed to fine. I am not sure if he will ever be able to ride the big coasters?
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So sweet

So I guess I am jumping in with both feet first... I did a family... It was scary.. I prayed there would be at least one good one for each family... (secretly I had a blast, because they are my family and dang fun, these are a few of my faves) And let me re-emphasize I am not professional and I have never done this before and I have a ton to learn.



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Playing catch up.

Day after surgery day..... We took the fam to Lagoon for a celebration... Gator's tubes, Daddies birf-day, and Ry's birf-day. It's what fun is...

We have played and played some more...

Coming up.... Labor day BBQ, Ry's first day of pre-school/birthday, Primary pioneer trek, The Heart Walk, Super Saturday and we keep on roll'n roll'n roll'n (snnnap) Raw hide!
All the big cousins

Auntie came to stay.

Heart Camp, A blast... These are the only two pictures I can find... At the outdoor movie...

They are both blurry.YUCK...(Any heart families out there have better pictures of our family and wanna help a sista out?)
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ready for this catch up?

Grandpa "Grape" Great pushing Gator on the swing.

POSER

Gracie in town, Ry in cousin heaven.

Can't tell who is who from behind.
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