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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Friday, June 29, 2012

Where Oh Where Have we been?

It has been a long time since I have actually made time to document our little lives... I haven't felt up to it because......

Dun dun na NAAAAAA...

Our Grande Finale is on the way... Baby #4!!!

We are thrilled... (feeling awesome would be a bonus, but we can't have everything... can we?)

No extra drug help... just a happy little surprise... Maybe my body figured this whole thing out? We are Due in January. The Doc says the 10th but I am not making this one come any earlier, because I want to try and not have a c-section... My easiest delivery was Ry and she was 7 days late...

So other than cooking a baby in my belly, we have been up to a ton of other stuff.....
We have managed to, in no special order:
*Gone to Seven-Eight Peaks(what Gator calls it) on our Pass of all Passes...
*Had our 11th wedding Anniversary
*Went to dinner Theater with friends
*Spent time in the sprinkle
*nearly been blown away by the winds this summer
*Daddy and Nic have expanded the shop! So stressful!!!!! but neat to see Copper Canyon growing.
*Daddy biked his booty off riding 100 miles at the MS ride!!! We are so proud of him and all that he has done to improve his health... Now, if mommy can just do the same we will be sitting pretty. I can't actually diet, but I plan on improving my eating(when I finally can keep something down) and getting some walking in...
*played outside out front... Gator's most favorite thing to do.
*Been Camping with the Amazing Newtons..(see below, Or above..)
*Cleaned some(tried not to)
*played with Heart friends on play dates
*The two older kids went to Camp Hawkins for the first time! Had a complete Blast...
*Ry went on a baptism prep date with Daddy and will be continuing them through out the summer till her Birthday.
*We finally explored City Creek Shopping
*Been to Girlies Camp/Retreat for testimony night! We are so lucky to have some amazing girlies in our ward.
*Still working on piano lessons and getting better every day
*Spending time with our family as my little sister preps for her LDS mission... to Santa Rosa, Ca! She did a great job on her speaking assignment in church last Sunday! GO PRESLEE!
*Had an adventure day-o-fun with Averee and Kallie (sorry I slaughtered your name spelling.) My baby sister and sweet cousin...

I am sure I am missing something... MEHHH! My brain just doesn't work great... If so, I would have pictures of each event and each event would be documented alone.... However... Some events will be redone so that I can go into more details and I do have some pictures... They just weren't taken by me.... So I will need to collect them and then publish them here....

It does feel nice to have this nearly finished...

Individually-
Ry is playing hard this summer.... I am sure she is growing an inch a month... She is so fun to have and is my huge helper... She has a list of things to do and she gets them done... Love her.

Gator is doing so well health wise. We haven't even hardly has a cold since his Fontan. He is growing some, still a little guy... He needs a bunch of work done on his teeth.... ewww! He needs like 5 crowns and a couple of extractions, and 3 ish cavities filled...Looks like his bottle/meds/oxygen days are catching up to him. He loves playing outside. He asks so many times a day if he can go out and play... Then is totally bummed if no one else is around to play... That happens a lot until about 5:30 when everyone gets home and the circle fills with the families to play with.... I love our circle...

Munchie plays so hard everyday. She sings songs, runs around with the big kids, and looks like nobody ever takes care of her 99% of the day. I can't figure it out... we will get her dressed and hair done 3 to 4 times a day and still she looks like a orphan child. Oh well!

Okay that's us!!



Camping trip

 Clearly excited to be camping
 Munchie looks like she rolled in the dirt and we have only been at our camp site for 20 mins...
 Daddy, our master camper. He set up our awesome site that included our huge tent I lovingly refer to the Hilton...He also made dinner for the whole group... His own made up recipe of deliciousness... BBQ bacon chicken over rice.... YUMMY!
 Munchie did roll in the dirt...
 Daddy also let Ry rock the toe paint and did this awesome combo of silver and pink...
 We tried fishing but we didn't catch anything...BOOO
 
 These two gals get Munchie busy and happy... Thanks Meg and Ash...(Jake- we finally got Gator to call you Jake so you don't always think you are in trouble... He worships you)
 These could have stayed on the trailer and Gator would have loved it...
 
 Munchie liked to sit on them too...
 Thanks JJ and Adam... We had such a great time with your family.. We luff ya!
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Tuesday, June 19, 2012

Just a little time OUT!!!

We are all learning!!! Even the smallest member of our family!

Monday, June 4, 2012

On the first day of summer.....

My three kids did for me.....,
An extra lovely hour to sleep in.....
Two dirty kiddies.... Gator threw dirt all over Munchie and himself... There was so much in her hair that I had to wash it three times...,
Three major melt downs.... Gator was having a rough day....
Four library goers.... Started the summer reading program with the kids.
Five baby kittens.... Our big boys next door rescued five kittens and my kids want to help feed them and play with them...
Six haircuts for mom.....
Seven minutes in Dunfords for .99$ wheat bread!!! The best wheat bread I have ever EVER tasted!!!! Plus we also needed some chocolate chocolate doughnuts!
Eight more minutes in time out.... Gator drew in pen on the walls in Munchies room if it was lower I would have suspected her but it was way too tall for her to reach!!! Thank you magic erase, for your handy dandy-ness....
Nine o'clock, it's finally bed time!!!!
Ten kisses each!!!!
Eleven things I should do differently tomorrow!!!
12 zzzzzzzzzzzzzzz

Gator was playing with Munchie... Super heroes of some kind and he couldn't find her, he zoomed into the room and said "mom, I seem to have misplaced my super sidekick have you seen her?" I shook my head and he ran out!!! I yelled "hang on to those guys, they tend to be a little slippery!"

Friday, June 1, 2012

Pilot for a Day!!! Hill Airforce!

What an absolutely amazing day! Make A Wish of Utah is the best!
 Gator's appetite for anything with an engine or wheels was totally satisfied by this event. We got up bright and early and headed to base.. It was a little bit crazy because I didn't have my drivers license renewed and was scrambling the week before to get it done. It was actually a little blessing to have needed that info so that I didn't miss the renewal window... The DMV is cracking down and I had to make two trips to get it all done... Whew! Then we were bussed on base! I love that even the bus ride was exciting for Gator boy!  
*Proof 
Daddy!!! 
Gator and daddy and the Hanger! The first thing we did was have breakfast. I love that they thought of all the little things to make it nice for our families.... And having breakfast with jets is right up there on the awesome scale for Gator. 
Then each of the wish kids got flight suits... The joy in this little guys heart over this authentic suit is immeasurable.... He also received dog tags and a hat with his name on it... In the hanger, they also had different things to view and get close too...  
 Gator loved the planes.
 Each child had a special call name (Roger that!) obviously Gator's was Gator... Most people don't even know his real first name... But this awesome guy Gator is with is Tuff..... He spent countless hours as the mastermind behind this wonderful day... He did so much for the kids and made sure to talk to each one and spend a little time with them answering questions...
This is all the pilots!
 Ry loves being part of all of the action. She is such a sweet big sister and even though tons of attention is on Gator she is understanding and enjoys being with us as a family.
 They talked about the equipment that is used in flight. This helmet is worth 100,000.00$ I was a little nervous to have Gator try it on.
 Munchie did her best at being crazy cute!
 This is Mr. Ira at the simulators... Gator loved it because it was similar to video games.... There were so many dials and switches to keep track of...
Munchie and Daddy also tried it out... Both crashed!!!
Munchie also snuggled with Coach!!!
 Tuff is talking to Gator before the show starts....

 The jets looked so awesome... It was very loud and you could feel the rumble of them way down in your chest....
 This is the Captain and his wonderful wife.... The wives all made lunch for us.
 The kids loved everything.... We even got to spend the day with our little friend Hays and her Dad!!! Thanks Tuff and everyone who made this day so great.... Gator loves his flight suit and asked to sleep in it... I told him we have to take it off sometimes....



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