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Thursday, January 29, 2015

Update #8

I can hear his voice!!! Alex's village is amazing.. The nurses run their fanny off making sure every need is managed, doctors fret and worry over him, staff such as techs and housekeeping make sure he is super comfortable.. Every single person works tirelessly and with compassion and gentleness. Yesterday we started to remove lines and tubes, chest tubes, foley cath, pherisis catheters. Today Alex was successfully extubated. He is on high flow but holding his own. It's a much better place than last time. He has been able to talk to me. Asking for Chapstick for his super dry lips, his favorite stuffed dog Bensy, and little pink swabs with water. He is still pretty tired but is happy to have more mobility. We are all doing great as well.. Thank you all for the continued prayers and every other thing that has been done in our behalf.. 

14 comments:

  1. Best news I've heard!!! I'm so happy to hear this! Love you guys

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  2. THANK YOU!!!! This makes me soooo happy for you all!!! He's a fighter!!! THanks for letting us witness this miracle.

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  3. Wonderful update! So glad to hear he is adjusting to his new miracle heart!

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  4. Brynn, what an amazing boy you have. I love hearing how he is doing. And I am so happy for all of you that this miracle has come about. How great is God's love for each of us.

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  5. Thank you so much for the update! I'm so glad you are all doing OK. You are in my prayers!! LYL

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  6. WOW!!! WOW!!! WOW!!! I bet his voice is just about the sweetest thing you have heard in a long time!!! I am so grateful for those doctors and nurses and techs who have loved your boy for years. Please give every single one of them a kiss from me. ;-)

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  7. Thanks for the update! Sending Hugs! I told Elaine not to leave his side!

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  8. Yeah! Such windeful news to hear happy progress. My kids ask me to check for updates in Alex everyday. Sophee was with me when we read this and gave a big smile and said "I hope he gets to come home soon."

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  9. Fantastic! After such a long week, I'll bet that voice was the sweetest thing ever! Still praying. <3

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  10. It is good to hear he is making progress. Baby steps are fine, we will keep praying he will progress to the point he can play the way he has always wanted to. Hang In there and take care of yourself. We love you all. You have a wonderful family.

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  11. Ry came up to my car today after school and did her own cute little happy dance and sang "Gator got a heart yeah, he got a heart yeah, he got a heart yeah......" cutest thing ever!

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  12. FANTASTIC NEWS!! High fives for Gator and hugs for mom❤️!!

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Little messages to gladden the heart.