Zoo lights

Our first year to see the Zoo lights! It was fun! 

And ccccooollllldddd!!

And nobody wanted to walk... 

Or was very tired...

Or is going to hate their mom for posting this awesome picture!!! 

They are silly sisters

What ya doing in here Eden???? 

May said she NEEDED me mom!!!!

Nummy oatmeal for breakfast

May loves to eat. She prefers food over interesting things to taste. Eden would taste anything. I tried to list all of Eden's trials one time... Grass, dirt, dry wall, paint, dust, wrappers, dryer sheets, and so much more that I gave up. May is also a enthusiastic eater. Most of her meal ends up on her or like a mini food explosion. This is the one and only time I am tempted to have a puppy. That is terrible of me to think of doggies as floor cleaners. So I sweep. Some foods must dry before attempting to sweep them. Like rice or noodles... Unless it's dry it just doesn't work people. Oatmeal is another culprit. Plus it gets stuck in hair and on clothes... But she sure is yummy anyway! 

Christmas Card

Another free newsletter design by Smilebox

I wish I would have had more hours in my day to do actual cards….

Best wishes everyone!!!!

Ship shape

Monday we ventured to school. Munchie stayed with friends and I took Miss May. Oopsie, I forgot the stroller so I lugged the half child and May around. Or followed her closely as she walked the halls. It was an eventful day for the office and I hated being one more worry. Let me add here that our school is exceptionally amazing. The principal, office staff, and support staff (lunch ladies, play ground aids, phycologist, librarians and other teachers who know of us) are so thoughtful and helpful and don't make me FEEL like we are one more worry. But I wasn't born yesterday people.. Having an extra couple of not invited, non helping loops around can cause some stress. I am so glad for their continual support.

My momma heart could not be home and be worried the whole time. I watched him stroke and I was helpless to do anything. That is a yucky memory that I can't erase. Try try try as I might. Leaving him for long periods of time, will be a struggle I am going to have to work through. 

We went for 3 hours. Some of that time was filling in his sweet class about how he is doing and answering their questions. They were good questions too. We explained that they couldn't get Alex's sickness. We also talked about why he was gone for so long and why is brain 'went to sleep' and thanked them for the mail they sent and little gifts. That sure can make a person feel a lot better. He also told them about his shots. Getting his whole class to laugh when he said he gets his shots in his legs not his bum (turn around wiggle wiggle) -he is a clown.... At the end of the time he was really ready to be done. Tired and ready to lay down, hungry for a snack, thirsty, and having leg cramps. Those 3 hours were pretty long. The rest of the day was hard. He was cranky and whiney. I was impatient with him on multiple things. He was doted on in the hospital and expecting the same treatment at home. Well it wasn't happening the way he envisioned. We decided no school today. Instead we worked together for 2 hours at home laying about and translating French math, reading and taking as many breaks as we wanted. We also went to the school for an hour while the little girls stayed home with our Home teacher. We met with the district nurse to update Alex's medical plan. The Secretary and Principal sit in on this meeting and yet again put my concerns at ease.... Or at least more bearable. I like the nurse, but he doesn't problem solve and soothe like the school team does. This makes even more grateful for them. 

Eden asks all day long to go play at the houses she has visited. Gator wants to go outside and play. Which he can't in red air days. The temps being so cold don't help. MayLee thinks she is the bomb diggity for walking, I agree. Ryleigh keeps everyone informed with her knowledge of what is going on, her ability to cope is inspiring. We are all regular nuts. Thank you all for your kind gestures of love and support. Jeff and I have decided to move forward with the evaluations for transplantation. We went over the packet-of-crazy tonight and find confort in our attempts to improve Alex's life. 

One of our awesome neighbors (who happens to be a heart grandma) brought over Mrs. Fields cookies...that is Homer therapy in a nice brown bag. 

Home is busy

As much as hospital life is crazy, home life is just as crazy or more so. My mom came to stay with us to help me with all the kiddles and all the house stuff. I get embarrassed to have house work help, even my mom helping made me cringe... But, in the end I was so relieved to have laundry done and dishes cleaned that I am so grateful for her persistence. I am not talking just a couple loads of laundry... We are talking mountains:) I knew she could move mountains, and she so proved! I also felt guilty leaving her alone to manage the troupes while I took gator to get his blood work testing anti-Xa, protein c, protein s, anti-thrombin, pro thrombin gene 20210a/g and factor V lieden. He was not at all happy about doing labs. His buddy Tyson went with us , which  I am convinced is the only way he would do it. He hasn't been that big of a fan about the injections 2xs a day. But, he doesn't cry and pout with everyone any more. With all things we dislike, but know we must do, finding a happy will help. The happy for Gator man is that at home the shots are little needles. Diabetic size. His friend Joe brought neat-o bandages... He gets to pick one each time. So along with the other meds he is currently taking he will add these to his list. I bet you think we have friends at the pharmacy! 

We have been absolutely spoiled. I am so grateful for everyone. It is amazing that you can see a need and fill it. 

Tomorrow should prove interesting as I try and let him manage a part day at school. Wish us luck!

We made it home!!!

Gator had another great night! He had a blast when his buddy Joey came up for a visit. Having a friend visit was the BEST medicine. 

They played Go Fish and had slushies. 

Then we had some amazing friends bring up some yummy lunch that Gator decided sounded better then his. 

Nothing was keeping us there except his level checks. We can be home together and I can go to Riverton tomorrow for his labs. 

Our sweet friends brought a box full of stuffed animals for Alex to take around to his new friends. They also brought a Santa hat to wear so he can feel like he is  the big helper. He LOVED handing them  out . It made him feel so good . 

After all that we headed home and he crashed in the car ... 

Bed boy ever !!! 

We are so thankful to be together again.