Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Tuesday, June 19, 2018

MayLee's Preschool Graduation

Just one more of the little Homies to graduate from preschool. Way to go Little miss.
 Her performance and speaking part were wonderful.

 Each child said what they wanted to do over the summer. Hers was to go swimming. Then each child also said what they would like to be when they grow up.

MayLee: "When I grow up, I want to be a toy maker. But my fall back is a Cheer Leader"

No lies this is what came out of her mouth. I have no idea where she even gets this material.
 She made such sweet friends. She obviously towers over these little twins.
 Everyday she asked if her friends could come home with her.
Thanks Miss Joey and Miss Ashley for an amazing year! May learned how to write her name, she learned all her letters and sounds and began reading, she knows shapes and colors and numbers. Her art improved, she loved recess and playtime, she can recite the Pledge of Allegiance, all the days of the week all of the months, count by 10's and kills it at cutting. I feel like she will be very prepared for Kindergarten. 

Monday, June 18, 2018

May 17, 18, 19, 20, 22,23

Park day at preschool is so fun. May loved playing with her friends from school.

 After Ortho we did even more geocaching
 I can't remember why Eden has this most horrified look on her face.
 Alex is an official 11 year old scout. That means he went on his first ever overnight camp out. It was a success, despite my worry over his health and meds.

 We decided to volunteer as rest stop support for one of Jeff's rides. Ash loved riding his bike, May and Eden were killer at helping to fill riders water bottles, asking if they needed any nutrition or electrolytes, holding bikes while rides ran to the porta-potty.

 The three in the bright yellow are Kelly, Jeff, and John Jones

 Asher has been taking laundry to a whole new level of AWESOME!! He changes his clothes about 15 times a day. The hardest ones to distinguish are his undershorts, he loves fresh undies. As you can see here, he is still directionally challenged in some areas.
 with all that laundry we have clothes folding parties so often that sometimes it turns a little goofy. Daddy just has to start and we all join in.
 Walking home from preschool on a rainy afternoon.

May 16th

Just me and Asher smasher.... Sometimes when all the big kids are gone we need to get out in the fresh airs and let Ash run. So we geocached together....

We had to crawl into a really big scratchy tree, but we found it... He is supposed to be pointing at it, but if you can't see it right off, its the green tube in the center top of the photo.

May 15th

Today is national chocolate chip cookie day. We don't usually celebrate these kinds of things, but lets get real, who doesn't love chocolate chip cookies?

We decided to make it an evening, while Jeff biked the canyon, I hiked it with the littles. We also got in a little geocaching.

 We just can't get a great photo anymore. Somebody is not looking, or is totally interested in other things.

 Angie Joined us for the cookies!!

Tuesday, May 15, 2018

Trolly Square

We have been trying to go on some fun adventures while the kids have been off track. Yesterday Daddy took us to lunch. We beat daddy to the location at Trolly Square so we headed off to find a Geocache... This was a super fun one to find on the water tower. We also found this little light up miniature of the history of Trolly Square. Kind of cool to have neat things near us. Ry is just biding her time until she is out of school so she can have adventures and lunch with Daddy too.

Primary Children's Give-a-thon

We are incredibly lucky to be part of our community. I say it all the time, but, there is something amazing about living here in Utah. People are incredibly generous, and not just with their money, but with their time. We are amazed by the support of those who help us.

Many people who find themselves at Primary Children's Hospital, also find themselves in great distress. I would be lying if I didn't say, it is a place that brings out the very worse in us. Why? because we are usually on the extreme side of things, extremely stressed, sad, unanswered, under financed and so many other things. The hospital and staff know this and they want your experience to be as good as possible. I can imagine that if you are still feeling some of these things then you won't be having a Disney experience, but now that we have moved beyond our most stressful times it is easy to see how much and how often we were ministered to by this amazing hospital, and everyone in our community who supports it. Because, we are aware it would not be that way without the community support. I am most reminded when the children are invited to be ambassadors. Alex and MayLee were asked to come to the hospital during the Give-a-thon. We got to see all of those with a common goal to help the hospital. It felt more like a party than anything. With slush, popcorn, cheerleaders and face paint they all enjoyed it. We talked on 100.3 with Rebecka (oh. my. gosh.... this is my radio station.. so to meet Rebecka was really really cool) We also talked on 103.5 The Arrow. that was also really cool. We did a little bit with the Morning show. All in all we had a great time.