Too excited to sleep..

In just a few hours I should be getting up so I can go to the hospital to have this baby!!! I am just too excited to sleep! 

My one and only maternity selfie.. 

I need a hair cut and color pretty bad. Don't judge! 

Little bunny Foo Foo

We added a little bunny to our family.. It doesn't bark/meow it can be outside and it is happy to hang out in its little hutch until we take him/her out and play.. So much fun to be had with this pet. 

So mega fuzzy and softy.. 

We are not sure of the gender and so we don't really have a name nailed down. But so far the kids call it bunny foo foo so I guess that's it for now.. 

Prototype 1... Only a somewhat fail

"We want to be mermaids mom"... 

I thought about it and decided to sew a couple.. May's fits but Eden's ended up being too small.. They look awesome in the water.. Next time I will make it fit a little better.. May wouldn't sit in the pool, it was kind of cold.. She is a better dry mermaid. Or maybe we could try the bathtub. 

Mermaid = done

She is such a poser.. "Take my picture mom"...  She kills me! 

Bring on the nice

NST(non-stress test) looked great today.. So I guess that means I still get to be pregnant. One more doctor visit till baby day!! 

The kids were so excited to go to the splash pad on the day they turned on the water. It was still pretty cool out.. Friends in AZ would be wearing coats at 65, not playing in the water. They loved every minute. I finally called it a day because I didn't want to risk runny noses.. 

But today was a beautiful sunny 87 so we set up our new pool and enjoyed the cold water for a while. 

We also discovered the most amazing treat at Artic Circle... Why yes, that is a birthday cake dipped cone. And it is super yummy... 

 

MayLee had her first dental appointment. She did fantastic! Whew! Love when things go great. Eden on the other hand, gets to visit the pediatric dentist for some cavity fills.. Darn it! It must be all those ice creams. 

Results are in...

I am doing really spacy things more and more often. For instance, I was pretty sure I had published the last post last week.. Well obviously I hadn't.. 

Results of Alex's biopsy are awesome.. His pressures look like they have been improving more and more, his coronary arteries look great and we have no rejection!! He stayed for his IVIG treatment. Daddy and Gator hung out while the girls and I went to see my baby sister graduate from high school. I can't believe she is done. Now on to culinary school. 

Just 10 more days till baby gets here.. 

Biopsy day

Gator is having a big ol' biospy today. This  is a little different from his regular monthly biopsy. usually we can go through his neck and its pretty fast and usually easier to recover from. Today the plan is to go through the groin and they will be taking small bits of tissue from all around his heart. They will also be looking at his pulmonary arteries. I am hopeful that everything looks great and that we can still hear those magical "no rejection" words. There is always a caution that there can be a little rejection. We were the first case this morning, we made it to the hosptial at 5:55 with a check in time of 6:00 am. Alex was in great spirits and found a friend to play video games with. When we got through most of the check in and it was time to change he got a little pouty. Those hospital pajamas are "breezy". I forgot that detail and didn't bring his jacket with us. I  promised he only had to wear the shirt until we walked through the hospital. As soon as we made it to cath lab he wanted it OFF. He picked birthday cake air and I left him.... I get to hang until he is done. It's nice to sit here and see so many kind and familiar faces. 

Last week MayLee saw her Pulmonologist. We talked about all the advancements and classes he seen and been to in regards to NEHI. I am thankful he is doing so much to understand this very rare lung disorder. May charmed her way into the hearts of every nurse and doctor. She chatted their ears off and told stories. I wish I would have made a video because she really does talk and talk. In Doctor Uchidas words "we are doing beautifully with her". We need to do a follow up CT but considering baby on the way we decided to wait and talk again in two months. There are some new genetic tests that we can do, they might be pretty expensive and because they won't change anything by way of diagnosis or treatment we will probably opt to not have them done. These tests are elective and not part of a study, something that is only informative to our family and won't help other kids, so we will hold off for now. We got the OK to try and wean day time oxygen. I jumped right on that when we got home. I turned off her concentrator and checked her Sats to see her room air baseline... She is normally on 1 liter. We  need her Saturations to stay above 95. It was sort of a bummer to check her and have her dip to 88. I put her back on her O's and was able to get her to 1/2 liter... We have stayed there for a couple of days and I checked her yesterday and she was 92 so i had to bump her back to 3/4 liter. I guess this will be a pretty slow wean. 

We had an amazing Memorial day. The kids noticed the flag in our yard and asked why it was out there. It was a great way explain what Memorial day is and why it's important for our family. We are so thankful for those in the service who have blessed our life. We talked about 'Big Alex' and his help in keeping our country a safe and happy place to live. We also talked about Alex's donor and donor family. 

We had sunshine once

It's been a very rainy last couple of weeks. Right before the awesome rain that greened up our lawn so nicely that we haven't had to turn our sprinkles on yet, there was sunshine once. The kids (minus Ry who was at school) found their swim suits and played with water guns, ran through the sprinkler and jumped on the tramp.. Hours together outside and happy. 

Jeff and Gator were support for an all ladies bike ride called the Goldilocks. It poured rain that morning. They picked up a bunch of riders. Most needing to be treated for hypothermia. 

The rain has put a hold on training for daddy. It didn't stop him from doing the Grande Fondo. The course came right by our house. I took the kids over to cheer for him. 

Ry had a French night at school. The students displayed art, gave short speeches and we had French treats. 

My little stinker.. She found a stamp and decided to... Ummmm... Eat it? 

Plus anytime she is tube free, she looks so different I have to snap a little photo. 

Eden finished off her first year of preschool. She had her program tonight. This year she learned how to write her name, can say the Pledge of Allegiance, knows the days of the week, can say most of the letter sounds and can follow directions. I have no doubt she will do amazing things. 

I am not going to complain too much.. I am huge, and uncomfortable. Just three more weeks till baby gets here.. Three more weeks people.. There is an end in sight. 

Ry helped her momma out! Thanks for my cute toes.. I start NST tomorrow..  

Last bit of news, we painted the nursery today... Just need to do touch ups and get the room set up. The kids are off track. Although we haven't been able to go too many places. Alex has had low WBC and that means fighting infection or illness would be tough. So we hang out at home and try our best not to drive each other crazy.