talked!

I talked to the lady (Katrina) who establishes our insurance today, what a crazy job. She told me about a 43 year old mommy who is delivering her HLHS baby today. The family decided to do in home comfort care. This is one of our four options. I feel like is so permanent to take the baby home. In case I haven't explained all of our options I will re-write them and our feeling thus far. 1- Termination of the pregnancy. Obviously we are not choosing this one. 2-In home hospice comfort care. I would deliver at what ever hospital and take Alex home to keep him comfortable until he passed away. Like I said, we would really have a hard time with this. 3-heart transplant. We would need to move to deliver in California or Colorado be there until a neonatal heart is available and then wait for recovery. This couldn't work for us because I need to be closer to family. And the chances of getting a heart are really next to nothing. 4- the surgeries. Now there are no grantees that the surgeries will work. He will be in a lot of pain. We just still don't know much. Anyway.... Katrina, was very nice. She has been working with these types of situations for a long time. There are a lot of people involved in making this better.. thanks.