Just kidding!

Well as we have said before..... Alex will do as he will do. I spoke too soon. On Friday he tried to get that pic-line in, only to be unsuccessful. He also failed his swallow study. This kept him in the PICU on Friday so they thought maybe they would move him Saturday. Well he went down that morning for another stab at the pic-line and failed again. Ry and I went to ride Thomas the Train in Heber during this time. At about twelve they took him to the third floor where he lasted one hour until he went into respiratory distress and was taken back to the PICU and put on cpap. I was very disappointed to say the least. It is hard watching him struggle. He had an uneventful night. This morning we went to church at Primaries and after went to see him only to find he had come off cpap and was resting well. He had a very quiet day today and seems to be back to himself. The doctors aren't sure why things like that happen. These kids have nothing in reserve, so just the fact that he had been moved all around and poked so many times over stimulated and wore him out. I feel like he is so fragile. It is scary to think that even moving him around like that will make him sick. He will make another try at a swallow study in a couple of days and we will see how things progress. We have been practicing and he is taking his Binky pretty good now. Again I will try and post pictures soon....