#2. We got the results back. Alex's body did not respond to IVIG. He is still 85% sensitized. As brick-wall-ish as this feels, there are so many things that can be worse... It is, what it is. I am always pretty frustrated on bad news days. With a little sleep I see a little clearer and can make heads and tails of information. This means that our chances of matching a heart to Alex will be pretty slim. It means watching him deteriorate. It means we have fewer options. It doesn't mean we give up hope. It doesn't mean we stop living each day like we are normal people. When Alex prays he asks that, Teagan and He get new hearts soon. He prays for friends that are sick. Everyday is a gift.
His new medicine did improve his liver count. See, some good in there amongst the ick.
#3. I went to follow up and it looks like my issue has stumped my doctor.. Ha! He hasn't ever seen what has happened to me, happen before. He isn't a young guy either. We are all about crazy at our house. So I have to take it easy still. I can't believe these words as I am typing them but.... I miss working out and would really like to be better already... You don't appreciate your body until something isn't working full speed. I get to go back in ten days. In the mean time I am on a mission to research and get myself better. Luckily I have some great friends who have been through this too and I am asking them a zillion questions.
That's our three... Glad that's over, now on to good:)
1 comment:
Darn Antibodies..hang in there. They could just drop on their own or over time!!
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