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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Tuesday, May 24, 2016

Preschool Grad

Miss Eden graduated from preschool today. I just love her so. She memorized her part, she knew ever song, she loves school and Miss Joey so much. She has made many improvements in her reading, counting, and writing. Miss Joey has certainly prepared her well for Kindergarten. I hope she goes to school full of confidence and curiousity. 









Thursday, May 19, 2016

The girlfriend

One of Gators favorite people came for a visit yesterday. She took him on a bike ride, to lunch, and to the blue park, she brought Gator an awesome birthday present... She even brought home made lime margaritas (virgin of course).. Miss Elizabeth is amazing! She has a heart of gold. 


And don't let her size fool you.. She is ripped!!! I bet she could bench like four of Gator..  


Sunday, May 15, 2016

He's in!!!

Jeff gets to do Lotoja.. For other non-bike-ee folks. Lotoja is a 200+ mile bike ride from Logan Utah to Jaskson Wyoming. He is really excited. 

On Saturday he did the Salt Lake grand Fondo (100 miles). I met him at two rest stops so I could try out getting supplies and water to him. May even carefully applied sunscreen while waiting.

She was very thorough

We met daddy at the finish line!! Way to Go!!! 


Friday, May 13, 2016

A little of this..

I think we are all very aware that Asher-smasher loves food. Who are we kidding?? Which Homer does NOT like food? We have always tried to offer rice cereal and baby food, which doesn't last long. The babies want sustenance, they want what they see the rest of us eating. Who could blame them for wanting the good stuff? We try to eat as a family for all our meals and when things come right off mommy or daddy's plate, you know it's tasty...
Tuesday is Taco night, but not the same kind of tacos. We have taco soup, taco salad, soft tacos, Doritos shell, Navaho, taco ring, taco casserole, and fish tacos. We have never tried the taco pizza but it sounds kind of good? 
Last Tuesday we had beef barbacoa on corn tortillas with fresh cilantro, tomatoes, and avocado. They turned out sooooooo good. Here is Ashy trying out all the parts of the taco. 
Yummy, it's pretty darn good. 

It's like he is watching me for a reaction. Which I always follow with "mmmmmm buddy, it's sooo yummy!"

The kids are off track for the last time this year. We call it pre-summer because their summer is only three weeks long. Only for Ry and Alex, Eden is in the final stretches of preschool, then starting kindergarten and May is gearing up for preschool in the fall. 
So we have been doing some fun things. Today we visited Gardner Village and saw the Faries and fairy houses. Ry was so inspired to build her own fairy house. She came away with lots of ideas.  She will be working away on that project for the next couple of days. We also wanted to try going to the fairy forest near Kamas.. But it is supposed to rain. I realize we won't wicked witch of the west. (What a world, what a world) but there is a "dry" creek bed that turns into a raging river. Not super excited about taking a 9,5,3,11m group up to a raging river. It looks like we might have to wait until it's a bit warmer and dryer. 

Here is a shot of our group today. Gator got out of the fairy excursion. Thank you papa for saving him. 





Boys and their toys

These two guys share a love for vintage cars and trucks. Luckily John can drive AND had a 1956 blue beauty!!! Gator was giddy!! They went to get a King cone at Macey's, the Icecream cone was so large Gator couldn't even finish it. Then they headed over to see Bob who wasn't there but his new/old 1939 Chrysler Royal was and Gator loved it. John was so much fun. Gator is so grateful for friends like you!

 The girls had to jump into this photo opp.

Do you know what is really cool? Lap belts. 



Then he and his buddy William play "gonna totally maem you- but not kill you". Check out their weapons. 

This is the all important and universal gun sheath. Shirt! 








Sunday, May 8, 2016

You should name it Roofy

I love Eden, not just because she is my little girlie, but because she thinks of the funniest things to say.. 

Actually all my children say the most hysterical things all the time! 

But they are as sweet as they are silly.


We have been getting our garden ready by planting our seeds indoors. Each person chose something they wanted in our garden and we are going to try and make it awesome. 
Here are our first little seedlings popping out.



A couple of days later
And this is why she wants me to call them Roofy, the little seed pod stuck to the top created a little roof. Hahaha... 
It's looking better and better

Wearing her London shirt.
After Alex's appointment we decided to play at the blue park. So named for the lovely blue color.. Each park around us has a specific color that is dominant. The kids adore the blue park.


One of my favorite comments from MayLee this week is:
After having the most incredible tri tip dinner May called daddy a fech... Which is way better than Chef!! 



Unfortunately the clouds rolled in and the rain started. Our grass was happy, the kids were not so much. 










Friday, April 29, 2016

Helping mom

My little buddy.. 
He loves to pretend to drive cars...


Make messes..



Help me with the bunny..


Help me with the garden..

And sometimes sister sneaks in and wears her awesome Hello Kitty socks with her red sparkle shoes and feels fabulous doing so.