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Life with a boy and his Hypoplastic Left heart Syndrome, Also a baby girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, and Two Super Sister's!

Thursday, June 18, 2015

6 in love, 1 slightly obsessed

Daddy, mommy, Ry, Alex, MayLee, and auntie Preslee are so in love with this little man.. One girl is slightly obsessed.. 


She wants to hold him any chance. I put Alex in charge of Asher who was on his bilibed, while I popped in the shower.. When I came out Alex had given up on trying to soothe him and was playing his iPad. Ede on the other hand, had found a stool so she could reach him, his binki and was rubbing his tummy to make him happy. 

She layed with him while he sunned today.. Her nickname might change from munchie to lil momma! 





Monday, June 15, 2015

On the day you were born..

Little Asher,
As per tradition, the night before your delivery our family goes to Italian Village. We started this with Ry and we have been for each baby.  The bender is fantastic along with the meat balls.. Soooooo yummy!
Daddy and I arrived at the hospital at 5:30 and got pushed a little by an emergency and another mommy delivering. 
Right before we went back. 

We finally went into the surgical room at 8:35. You were officially born at 9:36.
-As you were being lifted out of my tummy the song "Sweet child of mine" by Guns and Roses was playing on the anesthesiologist's iPhone. You rock!!! 

The origin and meaning of your name is Hebrew, it means HAPPY or BLESSED. It is also one of the 12 tribes of Israel.  Your middle name James, is also your Papa Clawson and Uncle Marcus' middle name and your great grandpa Clawson's first name. 
You weighed 8 lbs and 5 oz.
You were a tall 21 inches long.

Here are a few funny/interesting things about the day you were born.
-A gallon of milk costs $1.99 to 2.89 
-18 eggs cost $4.34 (there is currently an issue with chickens that is killing them, drastically raising the price)
-On avarage a gallon of gas costs $2.89 
-A movie ticket is about 7.00$
-Our family loves to go out to dinner together but it costs so much to do so, we don't go very often. 
-We just got a pet bunny.(it doesn't have an official name yet)
-The weather was in the 80's, so sunny and beautiful.
-We hadn't settled on your name until you were about 6 hours old. 
-The first thing I noticed about you was how pink you were
-Ry is 10

Alex is 8

Eden is 4

MayLee is 2

-your very first visitors were Nic Dumas and Ryan Gardner.

The president of the United States is Barak Obama, the president of the Church of Jesus Christ of Latter Day Saints is Thomas S. Monson. 
Daddy is the second counselor in the the Sunset Ridge Stake. He serves with President Wensel and President Zamora.
Mommy leads the music in R.S. 
You have been so healthy even though mommy had gestational diabetes. You have been able to maintain your sugars. 
You, me and daddy spent most of our first days hanging out together. You love mommy because of the groceries, but I think you and daddy have an incredible relationship. Daddy can soothe you instantly. 
I thought you would be very big, so your go home outfit was too big. The hat was pretty dorky so I snapped a quick picture and you didn't have to wear it anymore. 

You did awesome on discharge day and on the way home. 
We had to go back for labs to check your bilirubin. Unfortunately you need photo therapy.. So you've been tanning all afternoon. 

Sister Brixey brought this adorable gift.. Eden even named and added this baby Asher to her prayers. 




Friday, June 12, 2015

Too excited to sleep..


In just a few hours I should be getting up so I can go to the hospital to have this baby!!! I am just too excited to sleep! 

My one and only maternity selfie.. 

I need a hair cut and color pretty bad. Don't judge! 

Thursday, June 11, 2015

Little bunny Foo Foo

The We added a little bunny to our family.. It doesn't bark/meow it can be outside and it is happy to hang out in its little hutch until we take him/her out and play.. So much fun to be had with this pet. 


So mega fuzzy and softy.. 
We are not sure of the gender and so we don't really have a name nailed down. But so far the kids call it bunny foo foo so I guess that's it for now.. 



Friday, June 5, 2015

Prototype 1... Only a somewhat fail

"We want to be mermaids mom"... 

I thought about it and decided to sew a couple.. May's fits but Eden's ended up being too small.. They look awesome in the water.. Next time I will make it fit a little better.. May wouldn't sit in the pool, it was kind of cold.. She is a better dry mermaid. Or maybe we could try the bathtub. 

Mermaid = done



She is such a poser.. "Take my picture mom"...  She kills me! 








Tuesday, June 2, 2015

Bring on the nice

NST(non-stress test) looked great today.. So I guess that means I still get to be pregnant. One more doctor visit till baby day!! 

The kids were so excited to go to the splash pad on the day they turned on the water. It was still pretty cool out.. Friends in AZ would be wearing coats at 65, not playing in the water. They loved every minute. I finally called it a day because I didn't want to risk runny noses.. 




But today was a beautiful sunny 87 so we set up our new pool and enjoyed the cold water for a while. 



We also discovered the most amazing treat at Artic Circle... Why yes, that is a birthday cake dipped cone. And it is super yummy... 

 
MayLee had her first dental appointment. She did fantastic! Whew! Love when things go great. Eden on the other hand, gets to visit the pediatric dentist for some cavity fills.. Darn it! It must be all those ice creams. 





Results are in...

I am doing really spacy things more and more often. For instance, I was pretty sure I had published the last post last week.. Well obviously I hadn't.. 

Results of Alex's biopsy are awesome.. His pressures look like they have been improving more and more, his coronary arteries look great and we have no rejection!! He stayed for his IVIG treatment. Daddy and Gator hung out while the girls and I went to see my baby sister graduate from high school. I can't believe she is done. Now on to culinary school. 



Just 10 more days till baby gets here..