Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Sunday, November 20, 2016

First week off track a success!!!!

How we even survived ??? I pretty much don't even know. I think it's crazy to have the kids in school, then we go off track and jam pack our days and I realize crazy is a serious understatement.

Eden lost another tooth. She pulled it out herself. She was thrilled by her achievement.
The three oldest have been taking a cooking class. They are having so much fun. I appreciate that they are learning and enjoying food and cooking. Master Chef Junior here they come.

These Irises are completely confused. I tried to explain to them that it is November and not April. They kept blooming until the other day when we got our first snow and they thought holy moly it is really cold out here. 
Apperantly my kids loved the warm before the storm. Ashy would take his monster truck to the top of our driveway. It is such a steep drive that the kids love to push things down. We have our own sledding hill right in our front drive. It can also be called the driveway of death during snow storms.

Chalk drawing and no shoes. 

The monster truck was so awesome. Boys like girls have things that just make sense. My girls will pick up a baby doll, wrap it in a blanket and rock it. They love cars, trucks and balls. But it just made sense to them to be a little momma to those baby dolls. My boys can make all kinds of vehicular noises before they can speak full sentences. It makes sense to them. Ashy pushed this all over our circle. Sometimes the truck would move faster then Ashy legs and he would end up on his belly in the middle of the road. He would pop back up and start all over with his noise and pushing. He loves stuffed animals and littlest pet shops like his sister too.... But trucks make sense.
My new not-not-favorite trick. The STOOL... Asher has discovered a world above himself. With cups of water, buttons on the fridge, candy jars, markers, pens, purses, homework, decorations, and pretty much everything else in the world we don't want him to get to in the drawers and on the countertops. He finds a handy dandy stool for the kids in the bathroom or my kitchen stool and carries it around the house to a desired location. 

Wednesday was a success. The prep for a pediatric colonoscopy is long. I was mostly successful in doing the all clears diet with him for solidarity. We went to the store for slushies and ramen juice. Tough stuff ain't no deal for this guy. Alex woke up like a champ after his FMT. The nurses all wished they could have a whole day of kids like him. 
Ryleigh was invite to see the auther of Diary of a Whimpy Kid. She had so much fun. Thanks to our friend Angie for the tickets.

Ryleigh also has been doing Volleyball camp. We discovered a little French Bakery next door to the center where camp is. Her two awesome friends and Alex's friend are also French students and so this was a really fun treat.

I had to throw in this selfie of my Eden girl.