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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Monday, April 24, 2017

March 22nd

With not too many things to do for the foundation we decided to utilize the tickets that were given to us and we went to Disney Hollywood Studios for the whole morning... The kids had a blast. 







In honor of the new movie we got this fantastic cupcake at lunchtime.

After this we headed to the pin exchange. This was an opportunity for all of the partners to be able to meet all of the Champions. 
The kids especially loved speaking French to a few of the Canadian supporters. They were astound that the kids had no accent and that they could totally communicate with ease. 


Miss America


We took a quick trip to the pool after.. The pool was like a mile away.. So it was quite the trip to and from.













March 21st

After breakfast Alex had an interview with Mr. Mick Shannon, who is writing a book and wanted to speak with a few families who have been seen at a CMN hospital. Not only that but Mr. Shannon is a founder of the CMN. He along with Marie Osmond, John Schneider and Joe Lake started the foundation that has proudly raised more than  4.7 billion dollars which is then distributed to 170 hospitals. So if you have ever had a child in one of these hospitals, you have probably benefited from these funds, even if you were able to pay your bills or not. 
After the interview daddy needed to work a bit, he took the kids to the pool while he worked poolside. I needed to hit the store for some breakfast type things that we didn't have to pay an arm and leg for. After returning from the store and the pool there was a huge Champion Welcome party.. Ace Hardware and Chicos gave SWAG and we mingled with a few amazing stars. 




All throughout the hotel, there were signs of statistics and champions. 



Up next was Facebook live with Allie Simpson. He was not shy.

To finish out the night we went to the corporate sponsor and Champion mingle. They had amazing food. And tons to do. The music was LOUD... So we didn't stay a super long time. Plus also, we don't drink....

Wasted on us... The soda was free!!





OH WAIT!! Last minute we decided we wanted to check out Disney Springs, which is like the out door shopping mall.. The Lego store was Gator's favorite part.













Friday, April 21, 2017

March 20th Champion Momentum tour

The most incredible opportunity for Alex, over the past year has been, that he is the Utah Champion for Children's Miracle Network. A lot of our amazing family and friends donate all the time and don't even realize what they are doing. But we have been so blessed by Primary Children's hospital and every time you donate to a Children's Miracle Network Hospital you are helping the hospital make a stay (even a short stay) more bearable, not only for the patient, but for the whole family. As the Champion, Alex goes to different businesses that support CMN, to share his story and also thank the businesses. Alex has been a spokesman for quite a few events now and loves to tell people how amazing the hospital is. How the donations make our hospital the BEST ONE EVER!!!! The Momentum Tour was held in Florida. Ryleigh, Alex, Daddy and Me all flew out early Monday morning... The three littles stayed home with the amazing Devin and Chelsea (and Chloe doggie).

Delta is an amazing sponsor of CMN... It was so fun to fly with them.





When we arrived in Florida, Delta had a huge welcome party with balloons, plane tours, Alex even got to sign a star. 




There was much to do at the hotel when we checked in, so we finished out the night at the pool after getting settled.





Tuesday, April 18, 2017

March 19th

We decided Mays hair is so tangled and brittle at the end. She needed about five inches off.. I just did a quick cut...
Only before pictures... She also took the sheers to one side, lucky for us it looked like a taper. Another reason to trim her hair. 







March 15th

A two year old fit... This kid

March 13th

Ash loves being "Ut sigh" even if all we do is go on a walk. He loves to pick up little treasures. We have a whole bunch of things we have collected on our walks.






March 10th

Ew!!! Healing is gross-er-ish...





March 9th

Ashy fell right out of my bed. Big hole right through his lip. After we got him cleaned up he had his cinimon oatmeal and got that on his face too.


Snot bubble... 

May was feeling left out and was pushing her dolly stroller, while running. It must have hit a rock or a rise in the sidewalk because it stopped immediately, sending May over the top. Don't worry, her nose and lip caught her fall.