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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Tuesday, April 18, 2017

March 19th

We decided Mays hair is so tangled and brittle at the end. She needed about five inches off.. I just did a quick cut...
Only before pictures... She also took the sheers to one side, lucky for us it looked like a taper. Another reason to trim her hair. 







March 15th

A two year old fit... This kid

March 13th

Ash loves being "Ut sigh" even if all we do is go on a walk. He loves to pick up little treasures. We have a whole bunch of things we have collected on our walks.






March 10th

Ew!!! Healing is gross-er-ish...





March 9th

Ashy fell right out of my bed. Big hole right through his lip. After we got him cleaned up he had his cinimon oatmeal and got that on his face too.


Snot bubble... 

May was feeling left out and was pushing her dolly stroller, while running. It must have hit a rock or a rise in the sidewalk because it stopped immediately, sending May over the top. Don't worry, her nose and lip caught her fall. 








March 8th

So right when you decide to get your yoga on, and the littles take over, there just isn't enough room on the mat for us all.



Later in the day, we went out to enjoy the very first signs of spring in our circle.









Monday, April 17, 2017

March 7th

IHOP is amazing at supporting Primary Children's Hospital. Gator was able to help in his ambassadorship to support Primaries as well. This time they really wanted to talk to him about his siblings. How they have been hospital heroes as well. They had this huge huge pile of pancakes and the butter is real. They even brought out a plate full of bacon which he was thrilled about. Primary Children's does a great job at supporting the patient, however we could give them major major props for how much they do for the rest of our family. 
This is a huge ice sculpture.




Then just to keep it real. Ashy decided that a whole brand new thing of wipes needed to be in the potty.








March 6th

Yesterday was Sunday, May started not feeling well at church and I called in daddy for help. He left meetings and came to pick up May and take her home so I could finish out church with the rest of the crew. I ran her to an Instacare and had her tested for strep and sure enough she had it. But, right as I left out the door Eden was barreling down the stairs and slipped and fell down the second flight...

So back to the doctor today for X-ray. She has a nasty sprain but that's all.
I also had her cultured for strep but luckily she was negative. 

Tend days of antibiotics for one and an arm in a sling for ten days for the other.

Don't you just love when somebody takes random photos on your phone... Homeworking with Gator man.


March 5th

There is a little scratcher in nursery. This is his second time coming home with scratches. Poor boy. I am glad he isn't passing these out. I try really hard to keep his nails short for this very reason. But they are just babies and learning. Don't mind his crusty nose... Those back molers are trying to come in. 

March 2nd

With kids off to school, Ashy got a little just mom to play with time.. We built some Duplo Legos.
Killed the selfies
Then when the kids got home from school, we took Gator to speed skating.



 It's really interesting how common things are used. The buckets are used to teach form, they slide really nice on the ice but help keep the little ones upright while they learn. Plus they have to sit on them and learn to just propel themselves using only their legs. 





Tuesday, April 11, 2017

End of February

Holy cow!!!!

The End of February did not disappoint.
One family home evening, we decide to go to our local ice rink and give skating a shot. We do live in Utah and have access to quite a bit of winter recreation. Alex fell in love with the ice and wanted to do something, anything to be back on it.... Sooooooo we looked at what was available. Hockey is out because, it's a contact sport. He thought he would try figure skating, but couldn't wrap his mind around it. Then we found out that speed skating is offered. So with one time on the ice he needed to take an instructional Ice skating class. 

He did awesome and graduated to speed skating...
 
It didn't take him long to catch on and now is hooked... We bought him some spandex and he can wear his helmet. He is off for a little bit until the next season starts. 
The other kids were patient with us as we tried to figure out the best way to keep them occupied while Alex was on the ice.


Good form...
 
Ashy had a month of injuries. 


MayLee jumped on this mirror. I am pretty darn sure it may be like 14 years bad luck because it is so huge. It was my awesome salon mirror. Sometimes it's tricky to work from home.