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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Thursday, January 31, 2019

Everything else till January 1st...




Cruising is sooo much fun. Taking the kids was amazing. Everyone loved their clubs, we had a great time at ports. As long as we stayed on top of anti-nausea medicine we were all happy. The food was fantastic. I loved it.













After we got home, I needed to go back to my original color, platinum is just so much upkeep. 
Thanksgiving with our Idaho family.

Our Christmas pictures. It was tough to get everyone looking and smiling at the camera at the same time. Then we mailed out our cards, I completely forgot Eden. So she says Merry Christmas too! I got a bunch back this year. Sorry, if you didn't get one. I sent out almost 200 cards, so I must have messed some up.



Both Ashy and May have no front teeth, so I made them both sing "All I want for Christmas is my two front teeth.

The Sunday before Christmas 








 Truck shopping for a new work truck. Notice the little side kick. Asher loves truck shopping and kicking tires. He is almost better than me at discussing packages and amenities. "heated seats are cool dad, but cooling seats too are even better."
Christmas Eve at the Clawson's. So many fun traditions. I hope it never changes.




MayLee was awarded the Character award at school for Compassion. We are so proud of her.



MayLee and Miss Rhodes

Sometimes, you are just so dang tired, you can't even come up the last two steps to go into your room for a rest.

Ry and I got to go to a really fun Rock-a-billy Christmas performance. It was a riot. We had so much fun jamming along to the music and wishing we were the back up singers.





Thursday, January 24, 2019

My Ry


   
She was a scarecrow for Halloween
Ry is so busy and hard to snap photo's of. Here are a few from our Cruise..

From Disney







Formal night

Ryleigh was in the School production of Singing in the rain. She loved having time period hair and make up. This is up prepping her curls and finger waves. Which she donned each night of the performance. I don't think I even got one of her all finished. Maybe she has one on her phone? I will have to ask her.

  
 For one of Ryleigh's ten hour projects, She and her cute friend Whitney (and sibs) earned money to then, plan a menu and purchase the items, then serve the pasta dinner to the folks at Primary Children's Hospital in the Ronald MacDonald Family room. Our own family has benefitted so many times from this program. Ry really wanted to give back. Whitney masterminded the project, and Ry brought sassy cuteness...



 This was important to note, the bread was the highlight of the meal. As fast as we could prepare it, it was snagged right up. But this butter was super slippery, trying to slather the bread was a bit tricky. But they managed to have everyone leave full and happy. (as happy as one could be, in such circumstances as one would be, in a hospital)

 Excellence night, showcases some of the things the Young Women have accomplished during the year. With just one more year to finish our programs, Ry and I are amping up our efforts to get everything done....