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Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Friday, April 20, 2018

March 28th

MayLee and Alex decided to pick me a tiny bouquet of all the tiny spring flowers. I thought it was darling that they kept handing them to me.


Asher was particularly fond of the greens...

It made my day..

March 29

Our newest Lego Master

We had to finish Star Wars the next day because the kids had bed time the night before. Asher was loving it, but needed his guns in order to shoot the bad guys. It was serious business guys.