I went with red and green..
Sunday, November 24, 2013
Brace face
After all these years it's time to fix my smile. While it hurts my mouth like crazy ... And eating is way tricky. Here's to straight teeth. Jeff thinks I look much much younger. It's hard to take me seriously.
Wednesday, November 20, 2013
A post from Ryleigh
Hi, I want to tell you what we have been doing while we are off track . We went to a hockey game on Monday. We screamed really loud, they even hurt each other nine times. Eden and Alex were crazy but it was so much fun . On Thursday, we went to a dollar movie. We were going to watch 'Planes' but when we got there it stopped. There was only the sound and no picture. So we saw 'Despicable Me 2'. I had great time. On Saturday, we saw Zendaya in a free concert at Traverse mountain. I was super excited because I wanted to meet her. But it was so crowded that I never did. I got to sit on my dad's shoulders so i could see her. After we saw Zendaya we went to JCW `s for dinner. I got a grilled cheese sandwich and french fries. On Tuesday, we got to see my grandpa and my mom got braces she does not like them !!! (insert Brynn- Correction, I do like them… I just think they hurt like crazy)… We still have plans to go Ice skating, maybe visit a park, go to Richfield for Thanksgiving, and my Grandma and Grandpa Clawson's. I get two Thanksgivings. My Aunt will sleep over because my parents are doing Black Friday. Mom says, we will get to go to the Library, and we might go to Trafalga to climb on the rock wall. Should be fun. LLLLAAAAAAA!!!!
*please leave me a comment!! I love you!
Tuesday, November 5, 2013
Undies FAIL
She is trying so hard to be independent. She just loves to dress herself. The problem is that, sometimes her clothes do not want to cooperate with her best efforts. This is what happens when you get your tummy through the leg hole. Only half of her booty is covered. The most annoying thing is the perm-wedge she has. It must be the fall her eczema is in full force on the back of her knee.
MayLee's Sweat test and Pulmo appt
Neuro Endocrine Cell Hypoplasia of Infancy seems like such a huge name to describe such a little persons lungs. We met with Dr. U and discussed May further. She is almost text book case. I was able to take my long list of questions and have them answered. Some of them must have seemed so silly to the doctor but I am the momma and I am trying to understand this little person. After her pulmo appointment she had a sweat test. This test helps us to rule out CF. A funny little test. They place these electrodes on there arms and activate her sweat glands. Then she is wrapped with warm packs and then this heating blanket. She couldn't bend her arms at the elbows because everything was taped into place. she looked so funny and I laughed until I snorted. The nurse thought I had lost it for sure. 

May kept looking at me like I was nuts for letting this strange lady do this. But she didn't seem too bugged.
We went to the fourth floor terrace to blow kisses to May's little cousin Jenivee. It was a gorgeous day!

A nurse was eating lunch and noticed may had fallen asleep. She asked if she could grab her a blanket to cushion her. She brought her a warmed blanket and we wrapped May in that. Then she also brought this cute blue blanket that May got to keep. Love her! We won't get the results of her sweat until this week sometime. She also had some blood taken for other tests and I am not sure what they all were. I can't remember. I should :{ but I can't. It took two pokes to get her tricky veins to mind us. They must be like her momma's they hide as soon as the needle comes near. 

Happy Halloween 2013
It took great effort and lots of giggles but we did get the pumpkins carved this year. It almost didn't happen due to how much else we have had going on. But, we squeezed it into our life. 
I am so glad that we did. May loved it. She really just wanted to eat her pumpkin raw. She liked tasting all kinds of things.
Even these stringy snot like things. This part of the pumpkin gave Eden the willies and she did not want to take the guts out of her pumpkin.
Yummy
Gator did the spider, Eden's has a tooth, May's is the grinning pumpkin and Ry's is the pumpkin with one eye. Hers looks the best because she did it at activity days and used a template. The other pumpkins are template free baby!!!


If you can't tell, that is Jeff not Si from Duck Dynasty. Although the likeness is unreal. He even has his Tea Cup sans the tea.
Wednesday, October 30, 2013
Road trip!!!
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