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Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Wednesday, July 23, 2008

Angel Max

I just wanted to tell Max how often we think about you! You where our first experience with HLHS and your family has been so amazing in sharing your journey with us .. He is forever our little heart Friend and we know he spent many moments by our Alex's side as he underwent his surgeries and procedures... Max's 4th (sorry if that is wrong) angel anniversary was yesterday. We know how many lives he touched for the good and still continues to do so... Thanks Kathy and Rob for sharing him with our family. I wonder sometimes why things turned out the way they did... But I do know that our "hearts" are forever touched by your sweet boy!

1 comment:

Anonymous said...

Brynn, I just have to take a minute and say, wow! you are AMAZING! You are always thinking of other people, that's why I like you so much! I am glad I can consider you a friend. you are the best example I could have!