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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Wednesday, July 23, 2008

Angel Max

I just wanted to tell Max how often we think about you! You where our first experience with HLHS and your family has been so amazing in sharing your journey with us .. He is forever our little heart Friend and we know he spent many moments by our Alex's side as he underwent his surgeries and procedures... Max's 4th (sorry if that is wrong) angel anniversary was yesterday. We know how many lives he touched for the good and still continues to do so... Thanks Kathy and Rob for sharing him with our family. I wonder sometimes why things turned out the way they did... But I do know that our "hearts" are forever touched by your sweet boy!

1 comment:

Angie said...

Brynn, I just have to take a minute and say, wow! you are AMAZING! You are always thinking of other people, that's why I like you so much! I am glad I can consider you a friend. you are the best example I could have!