Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Monday, October 27, 2014


Our major goals while at the hospital was to extend our home time. I joked with everyone that this was the dry run for when Gator gets his healthy heart. Most of the time spent hanging out with Gator one on one.. He loves room service so much.. They try super hard to make just what he asks for.. This is lunchables that we created.. 
He got some amazing things to pass the time. One of his very favorite things was a Snoopy Snow Cone Machine.. He invited everyone to get a homemade snow cone for free. I loved that he collected the snow in a barf bowl.. Hahaha.. Don't worry we washed it first. 

Gator made play dough guys too.. 

Yesterday we got everything all worked out and he was able to come home. 
Thank you all for the continued prayers. Sometimes I worry that people get tired of us constantly needing them. But, know that we are so incredibly grateful. 

1 comment:

Melissa said...

Don't EVER feel bad for needing prayers! We are all happy to pray for you! And, it helps us (and our kids) realize how many blessings WE have too!