Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Sunday, November 9, 2014

Silly old blog

Today I have finally downloaded all the pictures off of my camera and taken the time to put my thoughts and our family happenings all in one spot. 

Chronological order seems smart to as a way to help me rememeber everything I need to write...One week at a time momma...
We finally had Eden's friend fairy party... It was amazing and so much fun. We painted faces, read stories, had fairy olympics, everyone got wings, crown and wand, we even had pixie dust to give away. I won't lie, I was ready for a nap after that.

That night we carved our pumpkins... 

I lovr the shocked look on Eden's face after she touches pumpkin guts for the first time.. 
The  finished products..
And we still lit up Olaf, Ryleighs pumpkin she did with daddy. Even though he looked pretty scary now.

Gator and I zombied it up at clinic. We had a great time but felt that the rotting flesh was itchy. We ended up taking it off before long. Then we had these awesome spots all over our faces. It still had a pretty good effect. Next time we know to use liquid latex.
We caught up with our good buddy Teags who was doing reverse trick-or-treating and handing out treats instead. He was dressed as the tin man. If he only had a heart. 
They can't help but be goofs. We said good bye to our dear Miss Jen the NP. She moved to be closer family. We love our whole team and she will be missed dearly. We feel like our doctors and nurses become friends. She promised to stay in touch. 
Eden had her preschool Halloween party and parade. She was on of the beautiful Elsa's that trick or treated this year.

grandma made her dress and she loves it so much.

I missed Ry in the school Halloween parade but did catch her between classes. She Vamped it up this year.

Gator was the super tail end of the parade, but still had fun walking through all the classes.
May was a cute little witch.. with her O's ripped off. That little snitch has been taking it off so much during the day that I am about to go all drastic on her somehow. I wonder if home health has NoNo's.

We attempted trick or treating. We made it to about 15 houses... came home for a rest and then made it to about 10 more.. With a lot of this...
Resting on rocks, drive ways, curbs...

Daddy finally made it home from what seemed like the longest two weeks of our lifes. Lucky for us Pres came to stay and save us all from ourselves.

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