Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Saturday, July 25, 2015

Pioneer Day, but happy 6 month heartiversary!

Gator had an amazing clinic visit on Thursday, blood panel looks good, echo looks great, feels awesome, looks like he is growing. We are so pleased with how well his health is. This means he gets to start school on Monday!! (Did you hear the chorus of Angel's signing?) I am so glad he gets to go back to being a typical boy. Plus also, as much as we love each other he will be thrilled to not be with mom 24/7 and since I have the new little buddy that has filled the spot I am thrilled to let him go. He is slightly nervous, we met with school staff last week as well. We updated everyone on his 504 and came up with a game plan. It was amazing to cross so much off of his 504 instead of add to it. I have meantally prepared for lots of adjustment tears, lots of this is hard, and lots of growth in him. But we Homies don't give up because something is hard. We don't have to be the best at it, we just have to try our best. 
Yesterday marked his 6 month heartiversary. I took a minute to thank our Heavenly Father for his amazing second chance at life. I also thanked Him for our donor family. How their hearts must still ache. I have my first draft of the thank you letter we will be sending them. I have written probably 12 letters. This letter will be the one I want to send. Daddy wants to add to it as well so that it truly comes from us all. 
The kids did a primary pioneer parade. It was also a water activity so they have their swimming suits on. 
Ry and Alex visited the dentist and Ortho.. Alex has a cavity to be filled. I am thrilled it's only one little one after the year of meds and other stuff going on in his mouth. Ry had her bands changes and since her teeth were growing over her wires she got four teeth pulled.
She painted this rad tooth box because our tooth fairy has had so many issues. It worked, the tooth fairy was able to retrieve her teeth and deposit the cash. 

The kids have been helping with dinners and clean up. But I thought these green and purple beans were super fun. When you cook them they go green. Such yummy fun. 
This is Asher hanging out, while me and Gator have breakfast after clinic. 

Plus... We are still having fun.. Thanks to the Zamoras for your friendship that allows us to hang out but also lets the kids swim.. 

Monday is going to be super exciting!! Hurray for school! 

1 comment:

Nichole Hind said...

Yay for going to school! Ava is excited to see Alex there and be in his class! Also, Riley's teeth look like they were just about ready to come out...she scored on just getting them pulled! She's such a cute girl!