Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Saturday, September 19, 2015

There is a first for everything

Eden and Alex are playing soccer for the first time this season. 

Jeff participated in Lotoja for the first time, on a relay team and caught the bug. He is pumped to do it solo next year if he gets drawn.

I managed to take all my short people to the IHH heart walk. We had a great time. This is the first year of doing it without Dad. 

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