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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Tuesday, February 21, 2017

Don't you feel tired for me?



First off,

Ry Ry- This girl is working toward some really neat goals and possibly a great business opportunity. Ryleigh's STEM fair project is now going onto State. She is doing more testing and building another prototype, as well as building/sewing a few prototypes for others. we decided to make her project more desirable at state she is redesigning her whole presentation board. She named her product O2 fix. Her project name was oxygen fixation device, and I suggested Oxy Fix because it was the short version of the first two words in her project title. She said that sounded like a drug or a cleaning product. Hahaha.. which she doesn't want to associate with. So she used the medical abbreviation for oxygen, which I thought was appropriate. She is working on a logo design and colors. I love that she is creative enough to come up with things like this, but much more business minded like her daddy to see that it goes much further than a school project. She has been playing hard while off track and helping me a ton with kids. I adore this girl.


Alex Jeffrey- He must be growing up some... Each morning he is getting up, doing his work and practicing. Alex is making huge strides lately. I need to remember to praise him.
 Alex recently spoke at an IHOP conference. He did a beautiful job and was pretty funny. We were at a comedy club, so he wanted to get the crowd warmed up. Off track makes Alex very very happy!









































Edee-bow-beedee- She is so thrilled that her reading has taken off. She can actually read books from the library now. That is pretty much, the best thing ever.

She and Alex fight over everything... GRRRRR.... Who is going to sit in the main seat in the car, who will choose the show to watch, if they are doing something incorrectly/correctly... BOSSY BOSSY BOSSY.... I can't always promise sunshine and roses over here at the Homer-stead. In fact, they are down stairs arguing about who knows what, right this very moment.

*pausing to go figure out the status of the argument*

Typical brother and sister stuff I suppose....


May May- I am tempted to call this little girl; The collector and spreader of all small toys. She loves tiny toys and leaves them everywhere.

I decided today that I need to take some more photos of those two little girls. Nothing to show of them at the moment.

Asher-smasher-crasher-trasher-basher...... His new favorite obsession is daddy's tools.... He starts pitching a fit, and yelling "too too too" until I let him hold something.
 He try to use each tool as it is intended.

 loves climbing the ladder.


 Watches Daddy intently.
Is just in the way most of the time. He just wants to be near all the action.

He wasn't the best Valentine. On this day, instead of loving gestures he did destructive things... It started out at about 8:45 AM. I set out May's Valentines and her backpack. She was in charge of bringing 11 plain sugar cookies to her preschool class. I had purchased the cookies the day before. Each container held 10 cookies, that's important and I will tell you why.. I had to buy another container of cookies to get the desired 11 and that is a darn good thing. I set the cookies near May's backpack on the counter, so that I wouldn't forget them. While we were back in my bathroom finishing May's hair, Ash decided to pull the cookies off the counter. The fall of the cookies off the counter spilt them all over the floor and broke most of them. I was able to salvage three cookies to put in the other container...SAVED!!! Because of the rush to get to preschool there is no photo evidence that this happened...
9:30 AM I took May to school and came back to get myself ready. I put Ash in the shower got him dressed then started on my hair. I decided after a bit that I hadn't seen him or heard him in a few minutes. That is all it takes...
Comet and the toilet scrubber. It was not wet and relatively easy to vacuum up. But the boy was also covered in the stuff and I had to change his outfit.

11:15 I ran to pick up May from Preschool and had the kids keep and eye on the boy. Ry started doing her hair and looked up and he was gone. Meanwhile I had gone and come home to find that he had pulled the donut box off the counter. Was sitting in the middle of strewn donuts because he had sampled them and didn't care for them. Except chocolate, he loved chocolate... This also meant a clothes change.

12:30 PM I ran to the potty... 
I came back to find this nice huge mess... 


 I made him help me pick it up... It did not vacuum well. It goes all the way around the table into the kitchen..


No day is complete without a little Sharpie.. He colored on his cheek, the windowsill in my brand new closet, and the inside of my ottoman. 

He finished off his art today with pink. At least I can turn it over.  

Some days I just follow him around so the destruction is kept to a minimum. 



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