Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Thursday, September 14, 2017

August 20th MayLee's Sleep study

MayLee has been improving a lot. In the weeks and years since her NEHI diagnosis we have learned a lot about lungs and oxygen therapy. One more piece in her diagnosis puzzle is a sleep study. She finally had it and was a champ. With her new wonder women pajamas and "pink snuggly" blanket, the was ready.

We don't have results yet. Other than, she required oxygen to keep her saturation levels acceptable. She started at 1/8 LPM and needed to be moved to 1/4 LPM. Which isn't a ton but still an oxygen requirement. I look forward to the results, hopefully it will help us determine her needs for the future. 

1 comment:

Cindy said...

Wow, what a champ she was to go through all that! I hope the results give you an idea of which direction you are to go.