Gramma and Averee

Gramma and Ave came for a day to play!!!! Auntie Ave is doing a photo class, she took all these photo's for me!

May decided to help with her nebs treatment...

We went to Gardner Village on a witch hunt. 

To shake our booty

To check out some shops

And to hang out together!

Not for the weak in stomach (I am serious, Don't look if you will get queazy)

Well what do we have here miss May? Why are you so stinky and wet????

Surprise MOM!!!! I did a number just for you! Pooptastraphy. Curious how you are going to manage this one?

All the way up and in her hair... Are you kidding me? She feels so much better! Um I think it may be time to move on to #4 diapers.

Girls Well Check.

The little Girls went in last week for well Checks... Awesome that there are no shots this time. I prepped Munchie anyway. She was disappointed because they don't get to pick out of the prize drawer unless there are pokes...  Here are the results.

Eden who is 3-
Weighs in at 36.2 lbs and is the 90th % (just two pounds short of her big brother)
Is 38 inches tall, that is the 72% (she is almost as tall as her brother too)
She wears 4t clothes for the long legs she sports.
She also went to the dentist and has no cavities.

MayLee who is 9 months-
Weighs in at 18.15 lbs and is in the 60th % (2 pounds shy of the weight limit on her carseat)
is 30.5 inches tall, that is the 99%
She wears 12 month clothes and some 18 month depending on the make.
She has 2.5 teeth and will bust 3 more through any day. (ask me if that is fun?)

Both girls are impressive as can be!

a little crooked crack update

I know that she will be totally embarrassed that I shared her back end for all to view... But she is a teeny baby... with an incredibly cute and colorful back end.
The incision is completely healed now. It looks a little crazy with the purple polka dots going up it. I assume that they will eventually go away. I also thought in my day dreams of how I thought something like this would look once repaired that her sacral dimple would go away.  It is still there. Her hemangioma is finally at the stage where it doesn't seem to be growing any more. The red raised bumps are new and not going away. They might be related to the the hemangioma still in it's growth cycle. Or not...It's hard to know. That is the beauty of having documented it all with pictures. I can look back and see the progress and changes.

We got stopped at the store today. A very nice gal was curious as to why she needed oxygen and I told her... The long version is so much more impressive and I let it roll of my tongue. She shook her head and said the title was bigger than the baby. The same gal was parked in "preferred parking" (the handicap parking) and I offered to return her cart for her, so she stood by the car with the baby. She noticed that I was driving the van and asked if May was my only... No, she is my youngest of 4.... And not my first to be on oxygen. I told her about Alex and HLHS... Laughing she shook her head and squeezed my arm... Went back to her car and said "I see that you are still smiling"! I said absolutely cause the other way to do things just isn't an option. She completely understood. 

NEHI update

Last week I received a phone call from Dr. U. He had the information back from Denver. It is confirmed NEHI and at this point we won't be doing a lung biopsy because it is such a text book case. Well most of it is text book. The NEHI portion is. The fact that she also has Tethered cord syndrome and a lumbar hemangioma is interesting. She is one of a kind. We will still be doing a few more tests to rule out absolutely everything else. She will have a sweat test to rule out CF. That doesn't seem to hard so we can manage that. I think she also needs some labs done to check her Iron levels again. She has a ped appointment on Wed. so I think we can work with her doc to get those done. We will be sitting down with Dr. U  to go over everything and to discuss the nitty gritty details. I always have a little list of questions. Hopefully he will be able to answer them. This is such a new thing that not much is known. I watched a little video on Youtube about a little girl with NEHI and they talked about 400 to 500 cases world wide. I am mostly curious to see how this will effect her and her other issues. She is hitting all of her milestones and does very well as long as she has her oxygen. We have given her what I think are little breaks from it. It takes her hours and sometimes days to recover from the breaks that I can see right away that it is needed. 

As we move into sickness season I am getting nervous that we will be slammed with illness. I hear someone cough, my own kids included, and the hairs on my neck stand on end. My hands will crack and bleed from the washing. I am taking vitamin C hoping it will transfer through me. It might be a long lonely winter.

Down Town

General Conference landed on Eden's birthday this year. We thought it would be fun to go with daddy and papa down town to hang out and explore City Creek Center, while they attended the Priesthood session of conference. Half the fun of going is riding Trax.

It was a little scary for me to think of how we would navigate the stroller, oxygen, the diaper bag, a baby and a busy 3 year old. But, with daddy there we managed just fine. It is always a treat to people watch on the train too. You have to be up close and personal.

Happy Birthday to Eden

Miss Eden had her birthday. Turning three is such big business. She could actually open presents all on her own this year. The understood that gifts were given. And that there would be some sort of treat. I asked her what she wanted and she kept saying "pink icesream" I have never attempted to make an ice cream cake so we just had to improvise.

This little squish was happy to snag any paper that came her way.

She was so spoiled this year with clothes, boots and a toy from her sibs.

She also got gifts/cards from her Great Grandparents.

Waiting on the yummy stuff.

I know that she looks homeless. We went out back and picked raspberries. She ate them as fast as she could pick them. Then she would come and snizzle some out of my container. I didn't mind too much. Anything for this cute little birthday girl.

It took us a couple of trys to make it through the birthday song before she blew out the candles. She did it!