Bike season is here

Jeff road in the Salt Lake City Bike tour, last Saturday. He was so excited to officially start the season. He really liked the route except through Memory Grove because it was so bumpy and rough. Other bikers were rushing through that segment and that made it even more  crazy. The rest of the ride was smooth and awesome. He started the tour up by the medical bridge and finished at the  down town library. It's the marathon route so roughly 26 miles. The first part of the ride had climbs so you can really enjoy the rest because it isn't as uphill. He must have been between the first 20-40 riders to cross because he finished in about an hour and 20-ish minutes. That is crusing. I got completely lost trying to find my way to the finish line in the van with the kids.  The roads were blocked off making it hard to get to, we finally made it. Lucky for us, we have preferred parking and found a really awesome parking spot! Blessings in disguise, our medical madness. We came down to the finish line and watched him cross. Way to go! 

We left at 4:45 am so pj's are exceptable attire! 

She gets so frustrated that her legs are short because she wants to "det down". I won't let her get down until we are were we are supposed to be. She would like to walk. 

Black is slimming but he had totally rocked his weight goals.. Down 33 LBS!!! He has brought down his dangerous blood pressure and really improved his overall health. I am so proud of him, plus he has inspired me and cheered me on.. He looks dang hot in his stretchy pants... 

He didn't LOOSE those pounds he burned them off.. He and I hope never to FIND them again! I found 1 pound last week but I am back to recording and being cautious. Holidays are hard I found.  To make my goal weight I need to burn off that pound I found then burn off the goal pounds. Hurray for bunny food (salads) this week. 

Getting teeth

Teething is rough on little people. There was much snuggling required today. 

Photo op

Just a couple of my little girls. 

Kitty cat nap

What I wouldn't give for someone to ask me to go take a nap. She fights me on it. Then she falls asleep holding her icecream cone..

I tried to wake her but she told me she wanted to just close her eyes for a little minute till we got home. 

Mays Pulmo appointment

May had a pulmonary appointment on Thursday. Ideally we would ditch the oxygen. That was a pipe dream. There were lots of great things like; we don't have to do her breathing treatments everyday anymore. We can be amazed by her progress. She is on track or advanced for her age. She speaks about as much as an 18 months old. She can say 15 to 20 words including: 

Get down

Doggie

Thank you

Please

Ry

Mommy

Daddy

Gator

Dee dee (Edee) 

Grandma

Papa

Drink

Baba

Candy (also does the sign)

Eeeeew

Yucky

Sicko

Duck

Boogie

No

Mmmmm nummy 

Treat

Birdie

Go (she actually sings this with Elsa/Frozen)

Now to work on the signs and words for book, outside, play and nap. If she can tell me these words, she will be one happy kid. 

Also, we are ecstatic that she is a great eater. Often times NEHI kids work so hard to breathe that eating is secondary. This usually means a feeding tube to help get the nutrients they need. Especially since babies need fat for good brain development. I am so glad that she has done well in this area. 

She is walking around like a crazy lady despite her tether. She gets tipsy when she is off her O's a while, we can't figure out if it's lack of oxygen or if she is so used to having tension from her hose that freedom makes her more unstable. She wasn't a huge fan of the nurse or attending because she is worried about those guys. They usually mean Synigis shots of which she is not a fan. She was friends with doc Uchida until he tried to listen to her. She sounds about the same.. Crackle crackle... 

All in all a great visit. 

Make A Wish Easter egg hunt

We had a fantastic day Saturday at the MAW Easter egg hunt at the Zoo. An Eagle Scout team stuffed 3,000 plastic eggs. Gator wanted to talk to them, he asked them is they stayed up all night to fill them. He asked if they slept the whole day so they could fill them? Then he busted knuckles with them all and told them thank you! I love that he is getting better at being gracious. It is especially cool to see those who have helped to be so happy about him being grateful. I think he recognizes that now. 

After hunting for eggs we went to the zoo! We saw the elephant baby and the brown bears. Those were my favorite parts. 

We had lunch at Costa Vida, then Jeff rode his bike home... It was a fun but tough ride because of a gnarly crosswind. 

Conference

We had an incredible conference weekend. I feel renewed and so excited to have many of my questions answered. It fills up my spiritual bucket to have all the great new things to ponder. 

Each cup has a word and a candy. Gator listened and probably got the most candy. He also practiced reading because each sign had to be read correctly in order to take a treat. We had our friends the Bensons over for 'Pancakes and Prophets' an idea we stole from Jeff's brother.., what a fun idea. The pancakes were so yummy! 

Ry must have found my phone for this awesome selfie! 

We went down town to window shop while papa and daddy went to the priesthood session.