Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Sunday, February 4, 2007

From the Start

Well I said I would start a blog and here goes nothing. I think that because this is a blog for Alex it will be easy to let you know what he is or isn't doing and just feelings that we have been having and so on. I wanted to start from the beginning and write a sort of time line so that you know what we know and we are as clear as possible so far. SoIguess I will start with that...

August 25th- Home pregnancy test is positive.... baby on the way

September 22nd- First doctor appointment with Dr. Jarrett ( heard heart beat)

September 29th- Second doctor appointment with Dr. Jarrett asking for referrals because our insurance was changing.

November 2nd- First doctor appointment with Dr. Larkin

November 30th- Doctor appointment- Beg to find out sex of baby before Christmas....It's a Boy!!! Ultrasound tech has some concerns about his heart, but not sure.

December 26th- Official ultrasound-Every part of baby looks healthy and perfect except left ventricle. Dr. Larkin refers to Primairy Children's...

January 9th- Aunt Averee's birthday- Echocardioghram at Primary Children's reveals how serious Alex's conditions are.

January 26th- OB appointment- everything looks good- measure normal- heard heart beat....

That is it so far....

I will try and update as I learn more or if I think of something.... Thanks again to everyone.


sstar said...

Perfect! Not as hard as we thought it would be, eh?
This will be nice to see Alex's info step by step so that you wont have to tell each detail 100 times if you're tired of telling it.

I'm glad you keep us updated. We'll keep praying for you all.

Christine said...

Hi Brynn! Good to see you again :) I'm excited to hear how everything is going with you and yours. You are awesome. Alex is lucky to have a momma like you.