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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Thursday, March 12, 2009

What THE VIRUS!!!!

I our computer has been battling a nasty virus....It is lucky that our neighbor,bishop, and friend, has some mad computer doctor skills because he came over with his little USB full of meds and fixed it all up.

I wasn't able to post all the info about Paul, I tried to steal it off of someone elses blog(thanks Heidi) and post it to mine but it didn't work so good so I will just give you the link to his amazing bloggity. http://mytricuspidatresia.blogspot.com or you can check out the event page at livingforeden.com

Sadly my pictures from Richfield didn't show up either so I will be posting them above. You already know that because you see them..

I once posted about all the incredible holidays and how I wanted to participate and learn about each. I would try my hardest to make each holiday important. I have been very interested about St Patricks and it has been fun to learn about the history. St. Patricks is such an under appreciated holiday. I have really loved reading the Irish prayers. Here is my favorite.

May God give you......

For every storm, a rainbow,
For every tear, a smile,
For every care, a promise,
and a blessing in each trial.
For every problem life sends,
A faithful friend to share,
For every sigh, a sweet song,
and an answer for each prayer.
-An Irish Prayer-

The other holiday (if you will) that I am learning about is Lent. So it is out there for all the world to know I am choosing sweets as the vice I am letting go. It has been a hard couple of days with out my sweets, last night I even gave in, my will power is weak. Today I started over. It has been easier today. I am sure that by the time Easter gets here I won't even want them anymore. Maybe I will continue to forgo them all together.

I know you are all waiting to hear how my kids are. Ry got over her bug really fast. I guess it was just something in the air. Mr. Gator was really weird for a couple of days. I called his pediatrician. Can I tell you again how highly we think of her. She went through many things and finally thought maybe it was a reaction to the Digoxin. He was having all of the same side effects... WHEW! something to hang my hat on. She also recommended placing a call to cardiology to see if they had anything else the wanted to add for fear it could be (HF) I won't even type it because it is such a nasty couple of words. I waited for cards to call back but they are so busy. I started Gator on a pro biotic, for the fast poopies and by the next morning he was a whole new kid. His tummy must just be sensitive to some drugs. Then cards called back and said that we could take him off for a week and see if his output slowed down. I was so happy to say that I had found something that seemed to have worked... he is not all the way back to eating great, but getting better at every meal. He seems to have more energy- not surprised- more fuel in the tank, means more play. So it seems we have dodged another bullet. WHEW! Thanks for always thinking of us... And checking in...

3 comments:

Likes Chocolate said...

I am glad he is feeling better, and hopefully you will have some more time to by before the you know. Womens conf is around the corner. I have that Saturday open on May 2 and don't need to be at the airport until 9:30pm. I don't know where I put your phone number would you please e-mail me your phone number. kelleynr@yahoo.com
Thanks, Kelleyn
I look forward to meeting you!

Heidi McMillan said...

So glad he and Ry are feeling better!! What a relief. What a great idea to become educated about all the holidays. You've inspired me to be more festive and Irish now that I am married to one. All our love.

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