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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Wednesday, June 2, 2010

The Grand catch up

There is so much to catch up on. I have pregnant lady brain. Each and every pregnancy has taken a little of my brain with it... I didn't have much of a bran to begin with. Plus, once I make sure that everyone is dressed, fed and where they were supposed to be for the day I was ready for bed... so here is the catch up of all catch ups... Highlight version.

We made it to the IHH picnic... An awesome event... Love hanging with my heart homies...

Ry had her last field trip of the year to Jump'in Jacks... It rocked.. Gator got to go too...

Gator and daddy did their first Father and Son's camp out. It was a little cold but a success...

Ry had her end of year dance recital, she did fantastic and also informed me that she didn't care for these events at all... Must have some of my stage fright.

Gator had his Cardiology appointment... It was one of our best appointments. He is looking great, weighing in at 29 LBS (still)... This has been his weight despite my best efforts to fatten him up... We really only had two options for Fontan, either in the next couple of months before the baby is born, or wait until the baby is old enough to be left for longer periods of time. Dr. Su said that he thinks Gator is good enough to wait... YaY!!!! This means we go back to Cardiology in eight-ish months... then we will start the evaluation process which includes a cardiac cath and sedated echo. This will help us determine more about his candidacy for the Fontan.

I played the happy waxer at girls night out at the Casual Bloggers Conference... If you came and had the curly hair lady pull out your facial hair... That is ME!!!!!! My little sister saved me because we were slammed the entire night and my watch was off so we didn't end until eleven and had to make the 45 min drive back to Orem for my kids. It was so busy I only got one potty break, I needed four... LOL...IT was really fun. I have been reading blogs about people who came... It is neat to think I was in the same room as these people and didn't even know it.

Tomorrow is Ry's last day of pre-school, and her graduation. It is so exciting and scary...

The biggest news is.... Daddy is finally doing his business full time. He and his business partner own their very own business... We are so proud of him. So if you need cabinets or fine furniture just let us know.... I am going to post some pictures of their talent because it is amazing....


Now that the longest post in the world is over.... I will post pictures soon. I think I lost my photog bug because I can't seem to get a good shot for all my luck... So these are just to make memories not to showcase talent at all....

2 comments:

Cynthia said...

How funny- I just popped over here to get a link for my blog because I am also doing an epic 'catch up' post. Wish you could have been at the Conference on Saturday- it was amazing. I had the chance to be the class host for the 'Blogging the Atypical Family' class and you'd have loved it. Both instructors have kids with special health problems as did most of the attendees. Inspiring and humbling.

Glad all is well with you. May your family continue to thrive and have only bright things in your future!

Preemie Miracle said...

Glad you updated!! We need to get together sometime. My eyebrows need a good wax :)