Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Wednesday, November 2, 2011

Heart buddy get together

I love getting together with heart buddies. It doesn't happen often enough. It was so fun to have the boys together and enjoy each other. They were so funny. As they get older, they are very aware that they have scars in common, and who is who's best buddy. Munchie was in heaven as the only little girl... The other little guys are from all boy families.

They are trying to make hearts.

I think these two are the closest in age. Perfect for wrastle'in each other. High-ya!
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