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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Wednesday, February 27, 2013

Crooked crack update:)

May had her Neuro appointment Yesterday. What a simple visit. The whole thing lasted about five whole minutes. Dr. Walker(who is super nice) looked at her bootie and her feet, told me he had reviewed the ultrasound findings and came to the same conclusion that A) she has Tethered cord B) she needs a MRI to further diagnose C) she has great muscle tone in her legs and feet... So that's it people!!! I pretty much knew all that already.. I did get to ask wether she was in pain which she isn't. So we will plug along till April 9th for her MRI...

Gator got into the French program next year.. I am stoked for full days of school for him. We will be on C track. Yes our brand new school is already over populated and going year round. I wasn't super thrilled at first but I am feeling better and better about it. I can roll with it! I can roll with anything.. I just need to figure out what to feed Gator at school, Top Ramen doesn't travel well and he isn't really a sandwich kinda guy. Not to mention he is extremely slow. I think it's a heart baby thing to eat like you have hours to finish.. I might be making trips to his school each day to take him lunch. He will figure it out I am sure.
We finally rode the Ferris wheel at Scheels for FHE! So fun!







1 comment:

likeschocolate said...

I can't wait tWo months and I get too see you and that baby.