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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Friday, May 15, 2015

Clinic and IVIG treatment

Gator had clinic on Monday.. He is doing great! His health and overall well being is better than its been his whole life. Blood pressure looks great, magnesium levels are good, liver is back up and great, he is tan and has energy... 
Treatment went smoothly.. It was a sleep over in the RTU.. He played video games and had room service bring him lots of yummy treats. Now we wait on a DSA.. Or donor specific antibody count. Hopefully it will continue to go down. 

Ry has continues to do well with her braces and expander.. This is Ry's chalk art. 

Eden is busy busy. I try and catch her in pictures, she is so active I can hardly keep up with her. 

MayLee is my helper and wants to "be big too". 



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