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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Friday, January 15, 2016

And so starts 2016

And just like that we are into January.. May turned 3.. She is getting so big so fast.. 

Practicing
First time blowing out lit candles.. She couldn't before because of her oxygen and open flame rules. Something about blowing up your kid just never sounded super fun. 
As you can see in the picture, Eden was back up in case May's blowing was not effective.

We call this look Asher's unijammies.. Or merman jammies. 
Sitting up all by his self. 

May chose Classic Skating for her birthday activity..we had so much fun. We snowballed, whipped a Nae Nae, skate or scootered, and played blackout.. Ashy also slept. 




Ry mustache you a question.. 
Little miss May had her 3 year well check and is doing so great. She is above average on her height and weight and has been doing so well on night time only oxygen. Her little rib cage is looking sort of poke-e-out-e so we did an X-ray, still waiting on the results of that. But with her appointment and dance and the. The X-ray, it just wears a girl out. 
















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