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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Sunday, February 7, 2016

Day#4- Weight gain

Day #4-weight gain.
Ummmmm mine from stress?? Oh no, Gators. Well he can still fit his tiny hiney in 4t pants at 8 years old. He loves food as long as it is exactly what he wants. Steroids made him super puffy and heart failure made him look 8 months pregnant. His five year old sister is slightly taller and heavier than him..... And yet he owns it! 
This was two days after being home.. Steroid cheeks are super cute.

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