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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Monday, October 17, 2016

Come and gone...

Time that is... Hold on to moments of joy, let worry and despair move quickly on its way...

We have been forging ahead, here at the Homie Homestead. 

Ry finished up her very first season of volleyball and was finally struck by the love bug. She thinks volleyball is great!!!! This is a sport she actually really really loves and wants to play and be part of. She wants to play again... Her team Sugar and Spikes did awesome. They went all the way to tournament against the oldest team 6th grade to 9th grade and lost by two points... They won the first game, lost the second, and lost in the end. Ry even pushed through an illness she was experiencing. 

Thanks Coach Lyon for being awesome and teaching her the ropes.

Eden is making flowers for Auntie Preslee. She made an entire bouquet. I took it up to her last night with Ry. Jeff stayed home with all the littles who aren't allowed back in the ICU. 
 Gator is our guitarist and I think we know what Ashy is going to want to do... Percussion!!!! 


Preschool filed trips are the BEST!!! We went to Gardner Village to see the witches. 
Thumbs up

There was so much to see....

Eden had her friend party! It was an Arty party and a huge success!! Having all of those little girls in one room was busy work for all the adults, but we managed and they all had a blast.
I didn't capture much of the fun because I was so busy running the show. And Jeff was so busy managing the short people, and Ry was my assistant and well.... We got about three photo's... 
First as the girls were coming we set up the Party Rocker...we played music and had lights, there were balloons to play in as well. Then we read some inspiring art books we got from the library. It was fun to see all the different kinds of art. Then we had pizza... I ordered the little aprons from Amazon prime on Saturday night, and we got a knock at the door during the party. They had arrived just in the nick of time. After we cleaned up pizza (I was surprised that some kids don't like pizza, but we were saved by the breadsticks) the girls each got a canvas with their initial. They were able to paint it however they wanted. They all turned out fantastic. We sugared them up with cake and ice cream, opened presents and then... Sent them on their merry ways... Thank you all so much for the wonderful and thoughtful gifts and friendships.

More to come. 











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