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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Sunday, October 9, 2016

I can't make this stuff up

LDS General Conference came and went. It was lovely! So much spoke to my heart, answered my questions and validated my feelings and thoughts. 
Church should be in pj's every once and a while.

Alex had such a neat opportunity to visit our Sams club for a team meeting and show his gratitude for all that these awesome folks have done to raise funds for CMN which directly supports Primary Children's Hospital. What is more amazing is looking at the faces of these hard working individuals and telling them that they are making a difference in the life of a family right here in their town. We see Kathy , Donna and George all the time and really appreciate their efforts. 

This is Donna.. The top helper. 
This is Becky she is also at the top


SOOOOOOOO, I was up stairs when the whole fiasco went down so this is the story I got from a sobbing three year old. I was playing in the shower (fully dressed) I got Ryleigh's razor down... Then played some more, then was getting out of the shower and stepped on the razor and then BLOOD!!!! By the time we made it to the Instacare we had to soak off the toilet paper reminats. The towel is folded to the cleanest spot.. This is what had soaked through, I ended up just throwing it away.
 Poor little toe
So there is the tip of her toe, instead of sewing it back on, it was decided it would most likely turn black and fall off anyway. She has a nice wrapped toe for now. But she is healing nicely. She has had bronchial sickness and completely lost her voice yesterday. She seems much better today. I took her in for desatting last Tuesday, but the doc thinks it just a cold. I will just have to continue to watch her this yucky season and maybe have her start wearing her masks. It's just that time of year I suppose. 

Who loves sauce more than the chicken to dip in? THIS GUY!!! The chicken is simply the vehicle to the sauce, and let us not be discriminatory on which sauce we like most. NOOOO, we shall drink them all.


And wear them too, because what good is sauce if you can't take it with you on your forehead for later? There was so much mmmmmming and smacking of lips... And then I had to go and give him a sink bath like some lunatic who didn't want sauce in the car. The happiness ended..... 



Eden turned 6. She is such a delight. Eden is smart and funny and will tell anyone that she is the middle child. She loves having playmates on both sides. Eden is a great help at home, she is quick to get her jobs done and likes to play hard too. She is very creative and loves art. For her birthday she asked for Tri tip dinner and Chick-fil-a, she wanted an adult type (hard to color) coloring book and a volley ball just like Ry and she also really wanted a treasure box with a pad lock. Which she will be making with daddy at the shop. Eden is really taking off with her reading and loves writing lists and letters. Eden is growing so fast, she is the tallest in her class. We just love you Edee bow bee dee. 
 Making molasses cookies, easier without the sugar eaters, not nearly as fun without them.


Friday is library day... How lucky for us that they had these awesome Halloween backdrops



Don't-cha just wanna squish him.




















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