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Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Saturday, February 9, 2019

MayLee's Birthday, she's six and very much a mermaid

MayLee was super excited for her mermaid party. Our Rec Center has a little party that teaches the party goers how to wear a mermaid tail and swim with it. She even got a tail for her birthday so she can be the real deal. We had mermaid cupcakes and a mermaid's favorite food, PIZZA!!! And they swam and they swam all over the da-pool.





























































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