Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Thursday, December 5, 2019

He's all done

We just spoke with the surgeon. He said that the surgery went very well. It was pretty straight forward, Asher is doing well. He was able to correct the coarch. It was very pinched at about 2mm, when usually it is about 10mm. Now our biggest concern will be controlling his blood pressure. The doctor mentioned that this will keep him in the CICU a little longer with his body relaxed and sleeping to make sure that he has a good chance of healing up. We are waiting for him to get cozy in the ICU and then we can go see him.

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