Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Sunday, December 8, 2019

Recovery Day 2

Asher is doing great... We were able to get rid of so much today: the foley cath, the pacer wires, the drainage tubes, and a couple of meds. The plan is to keep him in ICU tonight and continue to tweak his blood pressure which needs just a little bit of medicine still. He has been pretty sleepy today, but has been able to eat and get up into a chair and sit for a while. That was rather traumatic for me and and him as he hurt and would cry out, but not cry for long. He was able to sit and eat Ramen and have a couple of slushes. Last night Ryleigh came for a visit, he was asleep for all of her visit. And today Grandma brought Eden, Alex, and May for visits. He also slept for most of that.

1 comment:

auntiejenni said...

Love his precious heart...You all are in my prayers...but special prayers for that little guy. ♥️♥️♥️