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Sunday, February 9, 2014

What's this??

Ha ha ha!! I asked Eden what that little spot was? 
It cracked me up to hear her say
-her Delly Button

Saturday, February 8, 2014

Nebs


I get MayLee to happily do her Nebs by giving her treats! 





Day 2

We have made it to day 2 and if you are questioning exactly what that means.. It means something huge!!! Yesterday was the first day of Congenital Heart Defect Awareness week.. It was also the first day Alex was listed for a new heart! It is such a blessing to live in a time when we have medicine to help us have more time with him. He is such a fun and sweet boy! Alex is listed 1B status and has 86% avoids.. In heart world talk, the odds are stacked against us. But, we have so many incredible blessings that we are so thankful for. We have each other at home. Being listed at 1B means he gets to live as normal as possible. It also means that I can take care of my sweet girlies who need me. All of the kids are so young. The baby has medical needs and doctor appointments that need to be taken care of as well. We are able to manage all of her needs with this status.
I thought I would take pictures of a few things that are normal to us but different to others... Add them here... Just for you!! 

#ournormallife




Wednesday, February 5, 2014

Thank you Pinterest

In my attempt to get healthy, and to deal with stresses that arise I have been crafting. I am so thankful for Pinterest. I can spend a good amount of my eat a snack stress finding something cute to do.. These two little projects cost less than 4.50 to make for both... Hurray!! 
I have been so amazed by string art! I think it is so interesting.. So here is the official 'heart strings' String art. The string was the most expensive part of both projects... There is oodles left over if you would like to give this a try too, just give me a buzz and you can have the string. 
Thanks to Walmart and Dollar Tree for the frame, I gave this a try!! It is a paint sample.. Well, four paint samples.. The sample had all seven colors on one strip. Then I used my Cricket and my one and only cartage has a heart! Whew!!! I have plans to do something similar for St. Patricks... Ombré is fun... This needs a little dressing up.. I am not sure yet how? So for now it will have to do.. 



Saturday is a special day..

Changing sheets can actually be fun!!! We played parachute for a good 20 minutes then jumped into the piles of pillows and quilts!!! 
This is Gator doing a beautiful tuck!

Eden is performing the belly fall fake out! She landed safely and giggling!! 
May was an onlooker!! 
Just one more mommy!!! 
Really!!! One more!! 






Friday, January 31, 2014

Blessed

I meant to post yesterday. Sometimes hours slip by so fast and my responsibility  as mommy means no minutes to do so. Everything went smoothly yesterday. Sometimes miracles and blessings are not what we expect them to be. We pray and fast, those prayers are answered if we are willing to see them. Alex usually feels pretty yucky from the anesthesia. Yesterday he was calm and restful. The doctor was able to take the measurements needed and coil the collaterals during his cath. Today he felt better than he did before we came in. His saturation levels were around 85 when we got there and 94/95 when we were leaving... I felt as though our prayers have been answered. I am so grateful for your faith and strength. 
We stayed in the recovery unit. It isn't like  staying on serg, cardio, or infant... But we survived. 
He had to lay flat for quite a while. It wasn't so bad with his green snugly blanket and tablet. 
We are a team. 

Gator went home with Papa this afternoon to relax. They did this puzzle and watched movies and snoozed a little. 





Thursday, January 30, 2014

One of his portraits

This is what it looks like to have collaterals coiled off.. So very interesting. 
Jeff is back with him now.. He did great!