Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Friday, January 31, 2014


I meant to post yesterday. Sometimes hours slip by so fast and my responsibility  as mommy means no minutes to do so. Everything went smoothly yesterday. Sometimes miracles and blessings are not what we expect them to be. We pray and fast, those prayers are answered if we are willing to see them. Alex usually feels pretty yucky from the anesthesia. Yesterday he was calm and restful. The doctor was able to take the measurements needed and coil the collaterals during his cath. Today he felt better than he did before we came in. His saturation levels were around 85 when we got there and 94/95 when we were leaving... I felt as though our prayers have been answered. I am so grateful for your faith and strength. 
We stayed in the recovery unit. It isn't like  staying on serg, cardio, or infant... But we survived. 
He had to lay flat for quite a while. It wasn't so bad with his green snugly blanket and tablet. 
We are a team. 

Gator went home with Papa this afternoon to relax. They did this puzzle and watched movies and snoozed a little. 


Kelleyn Rothaermel said...

Way to go Gator!

berrymom said...

I am so happy to hear that things went well. We have been praying for him and your family and love you so much.