Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Thursday, October 25, 2007

Pediatrician appointment

Both my kids had their pediatrician appointments yesterday. I was happy to have one visit and get them both in and out. Both kids did very well... Ryleigh is tall and very healthy, the dr. is always amazed that she is so articulate and "doing" so many things. She is totally over the boil on the side of her face although it did leave a very unimpressive purple mark. She is cute enough that no body will notice. She got her three year vaccination. I think it was just one shot and her flu shot. She kept asking "will this hurt?" I couldn't lie so I told her it would only hurt for a minute but I would hold her and it was okay to cry. She only cried for thirty seconds or so. Alex is doing good too. He weighed in at 14 lbs 14ozs. He is not gaining as fast as he was before but his height and weight percentiles are the same so Dr. Mashkuri didn't seem too worried. In fact she said he was fine as long as he didn't lose weight, this being an indication that he was starting to struggle with his heart. Through all of his heart failure they have been amazed that he still eats and gains. The developmental specialist also saw him and said she was impressed that he was catching up so nicely. They don't count any time that you are in the hospital as progression so Alex started out two months behind. It is crazy as I look back at Ry she was crawling around right about now and eating everything in sight. I just keep trying to do all the things the specialist said. (her name is Susanne Barnes, by the way) He doesn't even sit up without support yet. Well, we'll get there. Alex also got his flu shot, but because of his situation we are holding off on his vaccinations. I don't understand totally why, except they will become eradicated from his system when he goes on the heart and lung bypass machine and we would have to do all his last shots over again. He doesn't do very good after shots. eg. low fever, cranky, etc and so that might be another thing. Any way. We are doing good. Jeff's hair is almost all grown in and we will be doing family pictures soon.

1 comment:

Melissa said...

We were getting a little worried since we hadn't heard anythign from you in a while. I'm glad things went well with the pediatrician.
Carolyn wants to set up a meeting time. Maybe you can call her or email her. Take Care!