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Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Tuesday, February 22, 2011

Important Information

After breakfast Gator turned to me and says "Mom you need to take care of this business" and then he hands me his syringes from his a.m. meds...

He also informed me what he would like to be for halloween... A Bam-Pirate (vampire) wiss blooood coming out of the eyes down to his knees...

2 comments:

Anonymous said...

scary

Jenn said...

Haha!! I love that. What a cute little man.
Love you guys.