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Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Sunday, February 20, 2011

Visiting family


We had our family in town and we decided to take a trip to visit the Greats... It was really nice to be able to spend some time catching up. Grandpa had shoulder surgery and was still happy to see us all. I was terrified that Munchie would scream the entire three hours there and back but she did great.

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