Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Thursday, March 24, 2011

Just a quick update

1. We have a date for Gator's cath.... April 15th... The cath is really important in the process of getting to surgery. There are a few things that are accomplished. The first thing they check is pulmonary pressure, then they check his coarch, also the leakage from the tricuspid, and they also like to take a peek at function(the ability to squeeze)
2. Gator is oxygen free again. This is so nice to be free of his leash. He is feeling much better, he still gets fatigued after playing hard but seems to just need a few minutes to recover. He has complained of headaches when he is really tired but I just give him a little puff and tell him to hold still for a minute.
3. Munch has cut her second chomper. Those two little teeth on the bottom can sure make it tricky to nurse. Good thing she loves food.
4. Munchie girl is also the steam rolling queen. It is time for us to put away the little toys that are choking hazards and put the gate back on the stairs.
5. Ry is growing again, it is hard to keep her clothed. Poor things legs are killing her.
6. Because of the said growth, Ry doesn't need her booster seat in the car. Nice, since I had three carseats in the back seat of my Honda. It was hard finding seats that would fit. Now she can sit without one. I can't wait till we get a mini van. I know I am a goober. Mini vans are cool to me all right!!!!
7. A very cool thing.... Gator is now a Wish child with Make A Wish. This program is so amazing, I am so thankful to all the Dr's and volunteers and everyone who is involved with it.

1 comment:

likeschocolate said...

Mini vans are wonderful! I will be keeping the gator in my prayers. I hope all goes well.