Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Wednesday, July 6, 2011

Part 4

Gator hardly held still long enough to catch a photo or two. He was busy having fun. Then his little body payed the price. He took long naps in the day. I forced him to take them. I can tell he is getting closer to needing the Fontan. He gets winded just walking from the car to the grocery store. He usually gets upset and tells me his legs are tired. He pushes himself until he is exhausted and then asks in his misery to stay up later. I don't usually give in. Sparklers were a little nerve wracking because the "sparkle" gets close to your fingers. So Gator held it straight arm out until it dimmed. Too scared to wiggle it around or write his name...

Munchie is getting so great with her eye hand coordination. She eats almost anything we give her. She tried avocado, cherries, and mushrooms on this trip and loved them. I think she has the soft part of popcorn in her mouth in this photo.

Cheeb-B You are so fun! Thanks for playing mom so Gator could be the baby! His super favorite game!

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