Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Tuesday, September 6, 2011

Not really a report

So I caught the Doctor in the hall and we chatted for a minute because he really wanted to go over everything again. But, he said his findings were mostly positive. Gator didn't have any signs of vegetation (clusters of infection) or any clots. That is great news!!!!!! Although it doesn't really tell us much, except somehow he got staph in his blood stream and his body is trying like crazy to fight it off. He was really thirsty today, fasting for his TEE and it was hard. I did it with him and my own tummy was growling. He finally went down at 3:30pm and he was soooo thirsty when he woke up. He wanted an apple juice, some water and then caffeine free diet coke. After his rough day I let him have it. We will have more info tomorrow after the doctors round in the morning. I feel kinda bad it takes so long before I can update, it is super hard now that Gator can tell me he needs me for things. I spent a good majority of the day trying to distract him from his thirst/hunger and the other part of the day trying to get him to wake up and eat... Busy busy busy!

1 comment:

berrymom said...

Love you! We are praying and thinking of you. Loves!!!