Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Sunday, December 9, 2012


Ry was the VIP in school. For a week the kids get to display a poster of pictures. Then on Friday the family gets to come and tell the whole second grade how great our kid is... Ry had prepped daddy and I on all the stories she wanted told. She also wanted me to bring the tortoise. Well, we ended up telling a completely different story... Daddy came up with a great one that all the kids loved and laughed at. 
Ry gets to read the back of her poster. This explains all about her.
Then I told the story. When Ry was little she couldn't pronounce her SP sounds... So sometimes her words sounded cute and funny. If she saw something scary she would say it looked FOOKY and if she saw something pretty it was so Farkely.... The kids LOVED when I finally told them that our favorite thing to hear her say was Funge-bob Fuare pants....
All the kids laughed and laughed.
Dad was the photographer, Grandma also came to support our little VIP and help with Gator and Munch. 
Posted by Picasa

No comments: