Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Friday, December 13, 2013

We made it home!!!

Gator had another great night! He had a blast when his buddy Joey came up for a visit. Having a friend visit was the BEST medicine. 
They played Go Fish and had slushies. 
Then we had some amazing friends bring up some yummy lunch that Gator decided sounded better then his. 
Nothing was keeping us there except his level checks. We can be home together and I can go to Riverton tomorrow for his labs. 
Our sweet friends brought a box full of stuffed animals for Alex to take around to his new friends. They also brought a Santa hat to wear so he can feel like he is  the big helper. He LOVED handing them  out . It made him feel so good . 
After all that we headed home and he crashed in the car ... 
Bed boy ever !!! 
We are so thankful to be together again. 


auntiejenni said...

dearest little having you all and most especially gator in my heart and prayers at this time. our son and his wife just had an "egg harvest" and "swimmer spree" yesterday....out of 15 harvested, 10 were actually fertilized...yippee skippee....and i know you understand that well. trying to get little ones matter how they heart and life trying. and then keeping them here and healthy is the other half of the heart and life work. faith and trust in something beyond us is the only thing that keeps us going at times like these...the hard times that we all go through...and some with decidedly harder times than others have....or so it seems. i'm so grateful for the friends you have to do the miraculous things they've done....truly earthly angels. how would we ever get by without them? how indeed. loving you and praying for you from so far away, dear little niece. auntie jenni (farnes)

Mindurs said...

We are so glad to see that Alex is home. We love you guys and will continue to pray for your family. Wish we were closer so we could give you hugs. The Francis Family