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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Tuesday, July 8, 2014

Chick-Fil-A spirit night


Hurray for a fun night out. And no cooking for me, it's so hot and cooking sounds like it would heat up my kitchen.
Spirit night at Chick-Fil-A for Gator's healthy heart. Thanks for everyone who came out, enjoyed some chicken and yummy lemonade(or other favorite beverage) 
Ry wanted to help... So we put her to work wiping trays. Love this girl. The kids even got to go on the grand tour. We can't tell all our new secrets about how awesome it is. 






No proof that mommy was there. 









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