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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Wednesday, July 9, 2014

Two ways to have fun

We walked to the new park. The park is built for all abilities, which means it is accesable for wheel chairs, kids with walkers, or a wagon stuffed with two kids on oxygen... 
May loves the swings. She says "a din" and makes me pretend to do an under dog. We figured if we hook her tank to the swing she can go much higher... 

Not so high

Underdog status


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